dad

  1. T

    Neurologist's confusing response after EMG

    My father just had an EMG by a neurologist who told him last week that he suspected ALS after observing tongue fasciculations in addition to his other symptoms. MRI clean. MG & Lambert Eaton, MS ruled out as well as Friedriech's Ataxia, which his brother had and died from. Quick back story. My...
  2. A

    Ideas on keeping the memories of our PALS alive for future generations

    Hi all! I was browsing reddit when I decided to search ALS... I saw a woman post about having her Father record himself reading books for her children. I'm wondering what have you done with your PAL to create lasting memories for when they pass? Some ideas I have: My Dad has a Tobii so...
  3. J

    Caregiver to my dad Gary for 5 years

    Hello My name is Jasmine and I am 28 years old and from Los Angeles. My dad Gary was diagnosed on 12/12/12 and I took care of him until he died of respiratory failure in January of this year. I would constantly look at posts on these forums but I was too afraid to make an account and I'm not...
  4. J

    Caregiver to my dad Gary for 5 years

    Hello My name is Jasmine and I am 28 years old and from Los Angeles. My dad Gary was diagnosed on 12/12/12 and I took care of him until he died of respiratory failure in January of this year. I would constantly look at posts on these forums but I was too afraid to make an account and I'm not...
  5. H

    Scaring myself with my symptoms

    Hey everyone! I'm a 28 year old female who is quite frankly feeling like I'm loosing my mind! So let me go back 10 years when I was diagnosed with hashimotos thyroid disease... after starting the synthroid I was in gym class and my heart skipped a beat, starting my dreaded journey with health...
  6. C

    Frustated with Excuses (Venting!)

    Hello everyone, I posted awhile ago, but I need to know that I am not the only one feeling like my ALS boyfriend uses his diagnosis as an excuse to not be involved in activities. And please let me explain before anyone thinks I am being selfish. We were together for several years before his...
  7. R

    Recently Diagnosed

    Just wanted to say "hi" and to thank you for all the valuable information you provide about ALS. I have been visiting this site since the summer gathering information and hoping that all the symptoms my dad had would not be ALS. My dad just got diagnosed 2 weeks ago. Although the doctors...
  8. skipper66

    Just saying Hello

    Hi Everyone, Thought I'd stop in to say Hello. For new members I'm Kim (Skipper). I lost my dad November 21, 2015 to limb onset ALS. He lived with it for 3 1/2 years since his diagnosis. Looking back we think he had some symptoms for at least a year before his diagnosis...
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