Hi All,
My dad has been diagnosed with ALS and currently his speech and swallowing ability is severely impaired. I saw some news on Neudexta providing some bulbar symptoms improvements and was hoping to try it for my Dad who is living in India (I am in UK). I am struggling to find a way to...
My father just had an EMG by a neurologist who told him last week that he suspected ALS after observing tongue fasciculations in addition to his other symptoms. MRI clean. MG & Lambert Eaton, MS ruled out as well as Friedriech's Ataxia, which his brother had and died from.
Quick back story. My...
als
als?
arm
back
brother
confused
confusing
dad
denervation
emg
fasciculations
father
lambert eaton
mri
neurologist
story
swallow
symptoms
tongue
tongue fasciculations
Hi all!
I was browsing reddit when I decided to search ALS... I saw a woman post about having her Father record himself reading books for her children. I'm wondering what have you done with your PAL to create lasting memories for when they pass?
Some ideas I have:
My Dad has a Tobii so...
Hello
My name is Jasmine and I am 28 years old and from Los Angeles. My dad Gary was diagnosed on 12/12/12 and I took care of him until he died of respiratory failure in January of this year. I would constantly look at posts on these forums but I was too afraid to make an account and I'm not...
age
als
bed
caregiver
dad
diagnosed
dynavox
eye
free
hoyer
hoyer lift
lift
manual
medical
power
power wheelchairs
questions
ramp
respiratory
support
tobii
tobii dynavox
trach
wanted
wheelchairs
work
Hello
My name is Jasmine and I am 28 years old and from Los Angeles. My dad Gary was diagnosed on 12/12/12 and I took care of him until he died of respiratory failure in January of this year. I would constantly look at posts on these forums but I was too afraid to make an account and I'm not...
age
als
bed
caregiver
dad
diagnosed
dynavox
eye
free
hoyer
hoyer lift
lift
manual
medical
power
power wheelchairs
questions
ramp
respiratory
support
tobii
tobii dynavox
trach
wanted
wheelchairs
work
Hey everyone! I'm a 28 year old female who is quite frankly feeling like I'm loosing my mind! So let me go back 10 years when I was diagnosed with hashimotos thyroid disease... after starting the synthroid I was in gym class and my heart skipped a beat, starting my dreaded journey with health...
als
back
brain
children
dad
depression
diagnosis
family
fear
female
heart
love
mri
night
pain
sleep
speech
swallow
symptom
symptoms
symptoms?
tests
twitches
twitching
wrong
Hello everyone,
I posted awhile ago, but I need to know that I am not the only one feeling like my ALS boyfriend uses his diagnosis as an excuse to not be involved in activities. And please let me explain before anyone thinks I am being selfish. We were together for several years before his...
Just wanted to say "hi" and to thank you for all the valuable information you provide about ALS. I have been visiting this site since the summer gathering information and hoping that all the symptoms my dad had would not be ALS. My dad just got diagnosed 2 weeks ago. Although the doctors...
Hi Everyone,
Thought I'd stop in to say Hello. For new members I'm Kim (Skipper). I lost my dad November 21, 2015 to limb onset ALS. He lived with it for 3 1/2 years since his diagnosis. Looking back we think he had some symptoms for at least a year before his diagnosis...
Hi Friends,
Thank you for taking the time to read my post. I'm looking for some guidance on an issue I've been having in my face. I have an appointment coming up with my doctor, but in the meantime I've become pretty anxious about it. So I was hoping someone might have some advice to possibly...