cure

  1. Q

    Immune system destruction and recreation

    I'm not sure if this has been brought up already, but why isn't there any research being done on destroying the immune system and then recreating it using stem cells as a cure? I've read that they have done this for patients with multiple sclerosis, which is also an autoimmune disorder...
  2. jethro

    Entering 4th year of ALS - my status, pleace advice

    in a 750000 citizens capital of my country, i found just one guy (early twenties) who has ALS. he was in china, hardly speaking and moving etc so i dont have base to compare with him. there are at least more than 15 people having ALS in my town, but for sure they dont use internet. as i said...
  3. R

    Question Regarding FALS

    Hello, I am new to this forum and my mother in law has been diagnosed with FALS (we do not know what gene yet). She has 6 siblings, 3 of which were diagnosed with ALS in the past in their late 50's to mid 60's. My mother in laws mother is in her 80's and DOES NOT have ALS, she has also...
  4. T

    Advice appreciated.

    Recently I was having problems with my neck. I had an MRI at a local hospital that showed extensive stenosis of my cervical neck spine. All three spine surgeons I visited insisted on immediate operation to repair since my spinal cord is being compressed. I am scheduled for surgery on Jan 16th...
  5. S

    Mom with FTD and ALS

    Hi all, my name is Mari and I'm Finnish. I lost my mom to ALS on Nov 17th. She had an Alzheimers diagnosis on July 2017 as we took her to memory tests as she didnt seem to remember everything as normal and did not cook or do gardening anymore nor cleaned the house as usual. She was diagnosed...
  6. David

    ALSA PSA Appearance and Awareness Opportunity

    On behalf of the The ALS Association and Vitamin Enriched, a real people casting company in NYC, we reach out to PALS and CALS for participation in a public service campaign. We are looking for people who are living with mid to advanced stage Amyotrophic Lateral Sclerosis (ALS), and their...
  7. Z

    Study - Questionnaire

    Hello, currently me, a math student from Germany, and some others are researching about ALS. For further investigations we need some Patient information. Here i created a questionnaire which u all can complete. :) Questionnaire It would be very helpful if you (Patients, Relatives, Friends...)...
  8. K

    I hope I'm not letting him down

    In the Fall of 2015 my dad started noticing some weakness and stiffness in his arms. He became more easily fatigue that normal, began feeling like it was taking more and more effort to breath. Being an active person, he particularly concerned and decided to pay a visit to the family doc. On...
  9. jethro

    Experience with L-serine

    simple, cheap, accessible non esential aminoacid (except in my country :-( ). can anybody share experience? how much do you take per day? what kind of benefit do you get? this is not a cure, this is retardant. it freezes dying of MN. thats how i got it. havent heard any side effect. what i am...
  10. C

    Praying for a Cure

    I wrote this when my husband died in 2013. It has been 4 years and in that time, a dear friend lost her son to this disease, and I have a dear sweet friend who is battling daily. “In a few hours, four years ago, you left us. Here I am, wide awake, dreading the morning. If I knew then what I...
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