1. chally


    Although certainly not a cure my weekly session gives me some serinity and a chance to clear my mind. This journey to the bury hole interesting as it is tends to wear a person out a little R&R of the mind helps recharge all systems. Lov yaall Chally
  2. J


    desperate, just like everyone on this forum, i'm trying, trying... bureaucracy, science, time... everything is against us. what knocked me down is one scientist's sentence: "it is terrible to see patients dying faster then mice". time is crucial thing. my body is a weaker on a daily basis. so...
  3. S

    Update-hopefully to help others

    Hi, I am just posting to help others with the same anxiety I’ve gone through this year. I posted before with flaccid in a week and lmn sign. I’ve seen many top neuros and they agreed that I had something going on but couldn’t find the answer. I also received great advice from senior members here...
  4. C

    Please share your experience at ALS clinic - very frustrated!

    Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
  5. J

    Software companies, do they donate?

    we saw bill gates in ice bucket challange, nominated by zuckenberg. with just 10% of money they have, they can find a cure. have no info - did they donated? nothing is a such a problem but money...
  6. Buckhorn

    My sweet husband is gone.

    My PALS, husband Dave passed away a week ago, July 4th. It was sudden and I did not expect it. Dave had a history of DVT's, pulmonary embolism, and a heart valve issue, which had been monitored closely by a cardiologist over the years. After Dave's ALS diagnosis, we both felt a heart attack or...
  7. T

    Question about life if a cure is ever found.

    It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...
  8. M

    19 year old terrified

    Hello everybody. I am a 19 year old nursing student going into my sophomore year. I wanted to start off by saying my heart goes out to everyone dealing with this horrid diease. You are all such strong amazing people and my mother and I are looking to donate to the community and would like to...
  9. M

    My Wife

    Firstly, thank you for the opportunity to ask questions even with you all being busy battling ALS. My heart goes out to you all. I have also read the stickies and I want to stress at the very beginning that I am not looking for a diagnosis here (only doctor can do that) and I am also not an...
  10. T

    Question about end game planning

    Hi, this is probably the wrong place to post this, but I don't know where to put it and am comfortable in the vets threads. :) I am working on estate planning, not because I am in my end game, but because everyone should, incase they are hit by a bus. I apologize that this is a sensitive...