crying

  1. Kristina1

    Nudexta & PBA

    I've been on Nudexta for 2 months now. I was under the impression that it would eliminate PBA. But I'm finding that while it reduces the frequency of episodes, it hasn't eliminated them. I do think it is helping me fight for control- before Nudexta I would fight to try and regain control and...
  2. Erika

    Mom is being admitted to hospice tomorrow.

    The nurse that came for the initial evaluation was super nice and explained how my mom would get all the equipment she was already using, plus what ever she needs to be comfortable including a low air loss mattress. I was so relived. She also said they have a team who specialize or have...
  3. J

    Passed out at clinic and the doctor panicked

    We were talking with the doctor and Jay got hot and wanted to go to the hallway. He started acting strange and wanted me to stand him up but I said no and the doctor said no. His eyes rolled back and he was getting pale. I said the doctor his eyes are rolling back and he said I know and just...
  4. R

    Neurologist Scheduled May 18th

    For all of the people who have told me to get off this site or Why am I here? I apologize to you and ask you to disregard this post unless you have kind insight. This is for Nikki, Laurie, and Mike...and a few others who have helped me along the way. I have scheduled an appointment for May 18th...
  5. NothingButLove

    Mildly amusing experience at jury duty

    I'll do anything to get out of the house these days. When my wife got a jury duty notice, I thought, "Hey! That sounds fun!". She wasn't scheduled until June and she was just supposed to call in to see if she had to report. I called the jury office and asked if my wife could report in person...
  6. J

    My experience for those who are worried

    Hello to all, This is a long post and I hope the moderators will allow me to post this as a message to all those coming here with concerns over ALS. This is specifically for those with muscle twitching who have been cleared by a doctor. I know there are some people here who legitimately...
  7. A

    ALS signs?

    Hello everyone, I know you have to read lots of threads like this and I'm sorry for this thread so full of anxiety... I have an appointment with a neurologist in a few weeks and the waiting is killing me. I am 27 and I don't think I have anyone in the family with ALS. However I have the...
  8. F

    Lack of emotion

    My wife (PALS) stopped crying has been smiling a lot less. She seems to have total apathy. Is this part of normal progression?
  9. E

    My Mom's Diagnosis- Sporadic Bulbar Onset ALS

    It was sometime last spring when my Mom's voice started sounding hoarse. She discounted it as being sick since she typically loses her voice once a year for a couple weeks when she gets a cold. In June, my best friend got married and she couldn't stop crying. She said she was just tired ,but...
  10. Erika

    Just want to turn back time...

    I'm on my way to my mom's this morning. Nothing major has happened. Her hospital bed is scheduled for delivery today, that's about it. But this morning I am a crying mess. Just thinking about her makes me nauseous with all kinds of emotions. I see her getting skinnier and weaker. Normally I...
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