Hello -
First off, I apologize for the novel. I am just a very detailed person and want to outline exactly what I am experiencing and why I am starting to worry.
I have been reading this forum for the past 2 months as I originally began having 24/7 twitches in both my calves. This was also...
Hello,
I promised I will not post until I get checked with my doctor. I still have an appointment with rheumatologist but it will be in April.
So as the title says, i’ve been to als neurologist in Slovenia. The doctor seems really nice and well educated, I’m a bit calmer now.
He did complete...
Where do i begin? I am so scared at this point. Docs have freaked out about my situation. Been seeing a neuro as well for a while and he has seen "changes".
My name is Juan Vela am 36 Years old.
Have been married to my wife since i was 20 and love her more than anything. Have three healthy...
abdomen
back
brain
cramps
crying
denervation
diagnosis
emg
falling
fear
flu
heart
hope
hyperreflexia
leg pain
lift
love
mri
muscle
pressure
problem
scared
tests
twitches
twitching
vitamin d
wrist
wrong
I was recently diagnosed with PBP while at UCSF. I have always considered myself a strong woman and I’m trying to continue to be mentally strong in spite of what is coming in my life. I find myself crying at silly things. If someone sends a card or text offering support, if they send flowers...
Hi
First i would let you know english is not my first language.
I read a lot of your post like everyday everytime and i totally support you.
My story is
1- in septemver i had a lots of burning calves and when i watched at them i can saw and feel the fasciculations only in them for 1 month.I...
abdomen
arm
atrophy
back
bulbar
bulbar onset
burning
crying
eating
emg
fasciculations
food
mucus
muscle
nose
onset
scared
story
support
symptoms
test
tongue
wrong
This morning after getting up I felt very anxious and very quick shallow breathing. I was crying over nothing. I eventualy contacted my Hospice nurse and she first had me take adrovin (which did nothing) and now morphine, The panicy air hunger is gone but the breathing is still vry difficult. My...
Raoljost - (A Guiding Light)
Chapter 1
I wasn't able to run fast enough. My legs and arms were going as fast as I could force them to move and they burned with effort. My breathing was labored, but under control. Sweat poured from my brow and burned my eyes.
I could hear the hounds of hell...
ability
age
angry
breathing
crying
dad
death
desperation
exercise
eyes
fatigue
fell
free
grief
lead
lift
nose
pain
power
problem
sleep
story
stroke
taste
wanted
wes
wrong
For the first time since his diagnosis in June, my husband broke down. He has rapidly lost his ability to speak, and he was trying to tell me something that I just couldn't grasp. He tried to write it down but could only write one word that made no sense to me at all. He can't put his...
Hello, I understand that people here are going through one of the most draining years of their lives, and me crying about symptoms may not be the best thing to do here but if anyone can help with answers, I will be thankful.
I'm 27/28. Its been two years since since the symptoms started, and I...
Hi, Just looking for someone to talk to. I feel so depressed the past few days. I mean I've been sad and have my moments but it just feels like it's taken over my body. I keep picturing Jay when his breathing slowed and then his final breath. I go to work every day and then to go to my...