crying

  1. B

    Reason for Concern? (Long Post)

    Hello - First off, I apologize for the novel. I am just a very detailed person and want to outline exactly what I am experiencing and why I am starting to worry. I have been reading this forum for the past 2 months as I originally began having 24/7 twitches in both my calves. This was also...
  2. Y

    3.5 years with symptoms, finnaly went to ALS doctor

    Hello, I promised I will not post until I get checked with my doctor. I still have an appointment with rheumatologist but it will be in April. So as the title says, i’ve been to als neurologist in Slovenia. The doctor seems really nice and well educated, I’m a bit calmer now. He did complete...
  3. J

    Year Long Problems

    Where do i begin? I am so scared at this point. Docs have freaked out about my situation. Been seeing a neuro as well for a while and he has seen "changes". My name is Juan Vela am 36 Years old. Have been married to my wife since i was 20 and love her more than anything. Have three healthy...
  4. I

    Is crying a characteristic of PBP?

    I was recently diagnosed with PBP while at UCSF. I have always considered myself a strong woman and I’m trying to continue to be mentally strong in spite of what is coming in my life. I find myself crying at silly things. If someone sends a card or text offering support, if they send flowers...
  5. C

    s ared about bulbar onset

    Hi First i would let you know english is not my first language. I read a lot of your post like everyday everytime and i totally support you. My story is 1- in septemver i had a lots of burning calves and when i watched at them i can saw and feel the fasciculations only in them for 1 month.I...
  6. tripete

    Woke Up - Air Hunger

    This morning after getting up I felt very anxious and very quick shallow breathing. I was crying over nothing. I eventualy contacted my Hospice nurse and she first had me take adrovin (which did nothing) and now morphine, The panicy air hunger is gone but the breathing is still vry difficult. My...
  7. tripete

    A new short story

    Raoljost - (A Guiding Light) Chapter 1 I wasn't able to run fast enough. My legs and arms were going as fast as I could force them to move and they burned with effort. My breathing was labored, but under control. Sweat poured from my brow and burned my eyes. I could hear the hounds of hell...
  8. B

    My husband cried today

    For the first time since his diagnosis in June, my husband broke down. He has rapidly lost his ability to speak, and he was trying to tell me something that I just couldn't grasp. He tried to write it down but could only write one word that made no sense to me at all. He can't put his...
  9. X

    Another slightly worried person!

    Hello, I understand that people here are going through one of the most draining years of their lives, and me crying about symptoms may not be the best thing to do here but if anyone can help with answers, I will be thankful. I'm 27/28. Its been two years since since the symptoms started, and I...
  10. J

    Two months yesterday

    Hi, Just looking for someone to talk to. I feel so depressed the past few days. I mean I've been sad and have my moments but it just feels like it's taken over my body. I keep picturing Jay when his breathing slowed and then his final breath. I go to work every day and then to go to my...
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