crying

  1. NothingButLove

    One month down the road...

    It's been one month since my wife passed. I've had many strange emotions. However, for the last two weeks, it's pretty much been straight up depression. I can leave the house and go anywhere I want but I just don't feel like it. What I would really, really, really like is to talk to my wife...
  2. C

    Please share your experience at ALS clinic - very frustrated!

    Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
  3. A

    cant take this anymore

    hello everyone ,i am a 23 year old male from india.My problems started from november,2017.It all started with twitching in my face that continued for a month after which i started having some problems with my speech and my hands .i looked up on google and ALS popped up and naturally became...
  4. NothingButLove

    My universe is most likely coming to an end...

    I really, really wanted to be an active member on this forum. Around September of last year, my wife has wanted me by her side all the time. The depression, stress and physical fatigue brings me down. The lack of sleep just destroys me. I just couldn't find the time... I've seen posts saying...
  5. pdcraig

    What now?

    Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
  6. Lkaibel

    Hold on Tight...

    Then lose it in the car! My mom is in a nursing home I need to get her transferred to another ( not urgent, another story I just dislike the place muchly). Brian is progressing because ALS moves just one way as we know. Next up is more homecare hours, next up is the simple reality that this...
  7. N

    Bit of a meltdown....kind of embarrassed

    I went to my first ALS Assoc CALS meeting and everyone went around the room describing their PALS current situation and when it started, how it started, details, etc., in quite length....and I was unfortunately last on this circle of sharing (first time, hate sharing anything usually in public...
  8. S

    Bulbar ALS?

    Hi people. I'm from Spain, my name is Carlos and I'm 25 years old. I'm worried because this last year i started to experience some symptoms like arthritis, tinnitus, vertigo, cognitive problems, fasciculations over the body, muscle cramps, dipsnea etc... and my worts symptom my tongue... it's...
  9. D

    Family not helpful

    In another thread I explained that I didn’t think I’d be able to be enough support for my boyfriend who lives with his mom and sister. He and I have been together for 5 years but have been becoming a bit distant since my daughter died 7 months ago. I’ve been needing time to myself . But then...
  10. D

    Difficulty supporting a partner

    I’ve been with my partner for almost five years but we don’t live together and don’t plan too. Only a few months ago I experienced the sudden unexpected death, by fentynol, of my eighteen year old daughter. I’m still trying to cope with that. My partner has always been unable to be supportive...
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