crying

Hi all, I am so very hopeful that somebody can either put my mind at rest or give me the strength I need to really push my doctor for some more information. I am a 36 year old female. For the past few weeks I have noticed that I am having muscle twitching or "fasciculations' all over by body...

7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap. If it was just us, I'd probably suck it...

My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how...

now that the end approaches thought I'd share a few things,. This group has provided the best support. My five years have been filled with joy I never thought possible. I give credit to my attitude of not letting this beast get hold of my heart and soul. Also for my determination to follow...

My one year anniversary was last month. I actually decided to take that week off from work and spend it alone in Cape Cod, which was always a special place for us. I went to the beach at sunset on the very last day of this year of grief and sorrow. As I rode my bike taking in all the...

Salutations of the Day:-) *Having ALS seems unreal. I wake each morning reminding myself I have it. Checking to see what I can still do. Yesterday, my knees buckled and I collapsed. Luckily, I could hold myself off the floor until my family dragged me up into bed. Leg strength to raise...

Those of you who have kids probably remember at some point jokingly saying "I can't remember life before kids." Today, as I was loading my DH in the sling and moving him in the Hoyer to the toilet, it hit me like a load if bricks - "I can't remember life before this wretched disease." And...

Hi. Lately (few months) I have been feeling depressed and anxious. I am afraid of dying. Not the dying itself, but the existential questions around it. Was my life useful? Have I been inspirational, funny, social, intelligent...good enough? Will the not forget me? I keep getting stressed...

Three months ago I began taking Neudexta to stop crying at the drop of a hat. At that time, my copay was $120 for a 90 day supply. I tried to refill it today. The copay has increased to more than $1000! With all the other drugs I need to take, I can’t afford to pay that amount for one pill...

It's been one month since my wife passed. I've had many strange emotions. However, for the last two weeks, it's pretty much been straight up depression. I can leave the house and go anywhere I want but I just don't feel like it. What I would really, really, really like is to talk to my wife...