crying

  1. S

    I am so scared.

    My name is Stephen. I am 34 and live in the Uk. I am crying out for help and advice. I have noticed in the last week i have lost weight, and it is very clear that both my biceps are much smaller and softer. Especially the right one. Do go along with this i get twitches all over my body when...
  2. 1

    Please please help with my symptoms!!

    Hi all, I am so very hopeful that somebody can either put my mind at rest or give me the strength I need to really push my doctor for some more information. I am a 36 year old female. For the past few weeks I have noticed that I am having muscle twitching or "fasciculations' all over by body...
  3. rictak in IA

    I think I'm finally giving up

    7 1/2 years its been now. from a slight tingle in her left foot to total paralysis took roughly 2 years. very slow decline since then, really where do you decline to? her breathing is compromised, but O2 levels stay up with nightly use of the bi-pap. If it was just us, I'd probably suck it...
  4. S

    CALS for newly diagnosed

    My husband, the love of my life was diagnosed with the slow moving ALS 2 months ago. I have been freaking out and crying and a complete mess. I think I am sort of in control now. He has remained in control the whole time and says that he can’t afford to break down since he does not know how...
  5. A

    my journey winding down

    now that the end approaches thought I'd share a few things,. This group has provided the best support. My five years have been filled with joy I never thought possible. I give credit to my attitude of not letting this beast get hold of my heart and soul. Also for my determination to follow...
  6. M

    My One Year

    My one year anniversary was last month. I actually decided to take that week off from work and spend it alone in Cape Cod, which was always a special place for us. I went to the beach at sunset on the very last day of this year of grief and sorrow. As I rode my bike taking in all the...
  7. B

    Helping Others Help Us

    Salutations of the Day:-) *Having ALS seems unreal. I wake each morning reminding myself I have it. Checking to see what I can still do. Yesterday, my knees buckled and I collapsed. Luckily, I could hold myself off the floor until my family dragged me up into bed. Leg strength to raise...
  8. J

    A Sad Day

    Those of you who have kids probably remember at some point jokingly saying "I can't remember life before kids." Today, as I was loading my DH in the sling and moving him in the Hoyer to the toilet, it hit me like a load if bricks - "I can't remember life before this wretched disease." And...
  9. M

    Afraid of dying / existential stuff

    Hi. Lately (few months) I have been feeling depressed and anxious. I am afraid of dying. Not the dying itself, but the existential questions around it. Was my life useful? Have I been inspirational, funny, social, intelligent...good enough? Will the not forget me? I keep getting stressed...
  10. I

    Generic for Neudexta?

    Three months ago I began taking Neudexta to stop crying at the drop of a hat. At that time, my copay was $120 for a 90 day supply. I tried to refill it today. The copay has increased to more than $1000! With all the other drugs I need to take, I can’t afford to pay that amount for one pill...
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