crying

  1. N

    Does this sound like ALS - Very Scared

    Hello everyone thank you for taking the time to read this and hopefully point me in the right direction. I"ll try and keep this as short as possible. For the past few weeks I've been experiencing extreme fatigue in my left arm and left hand. It seems to have been getting gradually worse by...
  2. N

    So sorry to bother- Bulbar ALS? Please help

    Hello, I am so sorry to bother you guys. I have read all the stickies but feel I need to ask some questions anyway. I am nearly 35, a woman, and the mother of two small children. I have health anxiety. Recently (since about 2 weeks ago) I've started having some weird mouth/throat symptoms. It...
  3. A

    Will I get it as well?

    First of all, thank you to anyone who takes the time to read this. This is the first time I have ever actually reached out to anyone regarding my fears. I have always just led my family and friends to believe that I understand that I will not get ALS.... To start at the beginning... My mother...
  4. L

    3 years since PLS diagnosis

    Here’s where I am at 3 years with my PLS: • 2009 o Started in left leg, then right (foot drag, falls) • 2011 – June – Diagnosed • 2012 o Started using a cane o Hands next –weakness and fist clenching at night – wear braces for this o Emotional lability (laughing and crying episodes) o...
  5. Nuts

    Lousy Options

    It's been five months since my husband's diagnosis, and I thought I'd come to grips with it. Right. I barely made it out of the hospital in one piece today and I'm terrified that I'm going to break down in public and just not be able to stop crying. We knew my sweetie has a vertebrate that...
  6. K

    One month down, lifetime to go

    Mom passed on 5/3, today is 6/3, one month has passed. I saw a movie the other night about a family that had lost their mother. In one scene the little boy came into the kitchen and just started jumping up and down and crying out, 'I want my mommy". That's how I feel some days. Tears are...
  7. zoohouse

    We're back and it wasn't pretty

    So we went to the Seattle VA for Tim to get the head array put on his chair, which meant he stayed in the hospital as he needs a hospital bed and lifts. It was a nightmare, and they almost managed to kill him. He usually stays on the rehab floor that deals with stroke, MS, and ALS patients...
  8. S

    Decisions

    I made a decision a few years ago to become the best "caregiver" I could possibly be. To provide loving care and comfort to Santa Joe. I would thank God every night for getting me thru the day and ask that he give me strength and courage for this journey. I have been brutally honest on this...
  9. T

    Third in my family

    I am the their person in my family to have ALS. First was my father in the early 90's. Then my sister in 2010. Now me in 2013. So this is no mystery to me. I knew when I started to loose the movement on my foot that I had ALS. Although I had to 3 neurologist before anyone would consider that it...
  10. G

    Living with Als in a third world

    Hi My father in law is now a year down the line with ALS. He lives on the Greek Island of rhodes. There is no medical support and no equipment or kit/ gadgets to make use of. He is confined to his room in his home. With breathing machines, trachie and feeding tube. He hasn't been able to...
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