Feeling down - I am so angry with EVERYTHING! I feel so bad - Jim is having a hard time and I feel angry with him. He is saying he is having problems opening and closing his eyes (okay not angry on that one.) He is back to getting up several times a night - but having problems getting in and...
In May of 2012, at the ALS Clinic, I was shown what I should do to exercise my wife's legs and arms and the therapist stated it was important.
I gently raised Margaret's arms and legs every day but noticed that DESPITE my diligence, they were increasingly getting stiffer.
Then, in the...
just sat here for bout 3/4 hour staring, reaching for something to type. that's the kind of day its been. my mother was diagnosed 5 weeks ago, at that time, she had no leg use at all, .
now? the minimal movement she does have is in her one good arm (little to no finger use) and her neck. last...
Well it's been exactly 20 days since my daddy, my hero was diagnosed with ALS. I want to think that I am handling this awful news ok. I've gone to the local AlS chapter and I've done some research, I got my parents in touch with the AlS chapter near them. I've made some lists and I reached out...
Hello, I'm new to this site, and to ALS..
I'm 35, and been diagnosed with hypothyroidism and hashimotos about 12 years ago, narcolepsy ab 7years ago and last year I was diagnosed with dysautonomia and POTS (postural orthostatic tachycardia syndrome) those are auntonomic nerves system disorders...
I made a post this morning, but for some reason it didn't post. I'll just rewrite it and shorten it up a bit.
I am a 38 year old married woman with an 11 year old daughter and 13 year old son. I live in Utah. 2 months ago, I started having weakness in my left arm. Actually, I felt the weakness...
worried about als
Hi! My name is Kathy. In February 2012, while working at AT&T I noticed that my voice would shake when talking on the phone and it seemed I had to put a lot of effort into speaking. In addition, I was choking on liquids. I also had trouble getting up from a sitting position. To make a long story...