Firstly, thank you for the opportunity to ask questions even with you all being busy battling ALS. My heart goes out to you all.
I have also read the stickies and I want to stress at the very beginning that I am not looking for a diagnosis here (only doctor can do that) and I am also not an...
I don’t post here often but I you all still feel such a community and connection here. It’s been 1 year and 3 1/2 months since we lost Ted. I was thinking this morning that I used to mark my babies’ ages in months but eventually we just say their ages in years. Is it the same with marking a...
First of all i want to apologise to Nikki i think my questions kinda angered her? At the newly diagnosed thread. I have searched so many sitrs but every site is so general apart from here.
I want to ask the caregivers here were you afraid you are going to be sick too? Or you got sick? I have...
This week is a particularly troubling week for me, with many distressing symptoms. First there was difficulty breathing. Monday night, after having eaten more than I needed, I started having apnea when lying down. The thing is I waited a few hours before going to bed to minimize discomfort from...
shortness of breath
So first off, I’m a male of 21yo. I’ve been healthy my whole life up until 2017, I was trying to lose weight from 190 and went down to 115 as of now, I was trying to lose weight but now I can’t seem to keep weight on. So about a month ago I started to develop bad back pain in my lower back, at...
Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
(Sorry for the long post, for all who don't want to read through my story, you can simply skip to paragraph "8" to review the symptoms and advise.
1) Hi, this is obviously my first post here. I am 27 years old male. I have a healthy semi muscular body, I was a good athlete in the past and took...
First of all I am very sorry that you are experiencing or having contact with this terrible disease. I would be very grateful for any help and advice concering my symptoms. I will try to post all of my symptoms and worries down below as clearly as possible but I warn you it will be a long...
I was recently told by my internist that I most likely have Myasthenia Gravis, ALS, or something similar. She is not thrilled with my care thus far by my current neurologist and spoke with the chief of Neurology at the University of Utah, who specializes in ALS, MG, EMG, etc. He has agreed to...