Firstly, thank you for the opportunity to ask questions even with you all being busy battling ALS. My heart goes out to you all.
I have also read the stickies and I want to stress at the very beginning that I am not looking for a diagnosis here (only doctor can do that) and I am also not an...
I don’t post here often but I you all still feel such a community and connection here. It’s been 1 year and 3 1/2 months since we lost Ted. I was thinking this morning that I used to mark my babies’ ages in months but eventually we just say their ages in years. Is it the same with marking a...
First of all i want to apologise to Nikki i think my questions kinda angered her? At the newly diagnosed thread. I have searched so many sitrs but every site is so general apart from here.
I want to ask the caregivers here were you afraid you are going to be sick too? Or you got sick? I have...
This week is a particularly troubling week for me, with many distressing symptoms. First there was difficulty breathing. Monday night, after having eaten more than I needed, I started having apnea when lying down. The thing is I waited a few hours before going to bed to minimize discomfort from...
als
als?
arm
arm weakness
atrophy
bed
breathing
burning
cry
diaphragm
distressing symptoms
early
exercise
fasciculations
fatigue
fingers
hope
night
nose
pressure
problem
shortness of breath
sleep
symptoms
weakness
worried
So first off, I’m a male of 21yo. I’ve been healthy my whole life up until 2017, I was trying to lose weight from 190 and went down to 115 as of now, I was trying to lose weight but now I can’t seem to keep weight on. So about a month ago I started to develop bad back pain in my lower back, at...
Just rambling. Today was 3 weeks since Ferd died. I've been trying to get the thank you cards done and have been in tears all weekend. I got the online stuff finished but the cards are still waiting, Not sure what it is about them that is so hard but... Getting his things together and doing the...
angry
anxiety
back
breathing
brother
caregiver
cost
coughing
crycrying
diagnosed
dying
eating
eyes
family
grief
hearing
life
pain
peg
sad
sleep
spasms
video
East side of the Central Cascades, a placid lake, silence broken by the lonesome call of a loon, or an osprey cry over head. Just an hour from our home.
Bruce
(Sorry for the long post, for all who don't want to read through my story, you can simply skip to paragraph "8" to review the symptoms and advise.
1) Hi, this is obviously my first post here. I am 27 years old male. I have a healthy semi muscular body, I was a good athlete in the past and took...
age
als
angry
atrophy
cry
cure
early
exercise
family history
father
female
free
headache
hyperreflexia
last days
problem
sleep
slurred speech
speech
symptoms
test
tests
twitches
twitching
unknown
wanted
weakness
wrong
Hi,
First of all I am very sorry that you are experiencing or having contact with this terrible disease. I would be very grateful for any help and advice concering my symptoms. I will try to post all of my symptoms and worries down below as clearly as possible but I warn you it will be a long...
abdomen
als
arm
bfs
burning
clinical
cry
dementia
diagnosis
emg
family history
fasciculations
hope
mnd
muscle
muscle burning
neurologist
pain
sad
sleep
symptoms
tiredness
tremor
vitamin d
weakness
worries
wrong
I was recently told by my internist that I most likely have Myasthenia Gravis, ALS, or something similar. She is not thrilled with my care thus far by my current neurologist and spoke with the chief of Neurology at the University of Utah, who specializes in ALS, MG, EMG, etc. He has agreed to...