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I'm a new member with a husband who, after 12 years of confusing symptoms and visits to doctors all over the country, was finally diagnosed in 2009 by the NIH as having frontotemporal dementia (FTD) with ALS-type motor neuron disease. Every day brings a new problem and I appreciate finding a...

My daughter told me today that she had gone to a CVS in Chicago and was paying for her purchases by credit card when she was "prompted" by the card machine, which asked whether she wanted to donate to ALS research. When my daughter went ahead and made a donation, she was asked to fill out one of...

Hi folks, Here's a tip that has worked for me a number of times. Purchase a small wallet with lots of those clear plastic credit card flaps. Then get some blank business cards from Staples or some other stationary store. Sit at your computer and come up different common...

Hello I would be glad to get some response from people with experience of EMG:s ( for example Wright and others) My symptoms make me scared. After having fascikulations mainly in calves for some months, I started develop atrophy inside hands . EMG 1 month ago showed no denervation or...

:):)Eryk and I were just sitting around talking, and we were looking at all these threads and forums - they are great, but both of us think it could use something new. :) This forum is full of places for caregivers, those diagnosed and the like. But how about this...a forum just for youth.:)...

One of the "Bucket List" items is taking our little guy to Disney World. We have promised him for years that we would go but never had enough time or money. Now we have time and the money....I still have a credit card :shock::smile: We live in South Dakota so will need to fly and are planning...

Beginning today, June 7 until June 27 CVS Pharmacy will be asking customers if they would like to donate $1, when using debit or credit card. Hopefully, this will be successful in collecting huge funds for research. Just a heads up to all in USA. Wanted to post this on general forum also...

There are three possible reasons you can't find your post: You're looking in the wrong place (try using the "Search" at the top of the page) The post/thread was moved (rare occurence, but sometimes threads or individual posts are moved to a specific forum in the site. For instance, a drug trial...