cough assist

  1. E

    Panic Attacks - Medicine

    Everyone, thanks for the continued sage advice on all topics. Hubby dx in 2013; now wheelchair/recliner bound, trilogy non-stop. Having some what I have deemed to be panic attacks. Comes on if he thinks he's not getting enough air or he gets upset about something. Neuro has prescribed Xanax...
  2. W

    Respironics cough assist

    Respironics cough assist CA-3000, used, good condition, purchased in 2011. $500/best offer.
  3. O

    Respiratory Failure on Trilogy

    My dad was diagnosed in May last year. Within 3 months he was in a wheelchair and 3 months after that his speech started to go. He is now in the end stage - no speech, no arms/legs, and unable to swallow. His FVC was 24% in January. He had been using the trilogy mask at night, but over the last...
  4. T

    tongue stuck - lock jaw

    I just wanted to post what we went through yesterday in case anyone has this issue so you know what we did and hope that it might help someone else. This is not something I ever thought would be a problem with ALS. Last night my sister was in distress and we couldn't figure out was wrong, now...
  5. N

    I read a lot about trach, but still have questions if you could help...

    First, I know I started several separate threads, and I wonder if that's okay. Or should I just start one and stick to it? I start a new thread with each new question, and I'm afraid I may have more questions, and more each day... My dad's doctor recommends that he gets a trach together with...
  6. M

    Cough Assist For Sale - Emerson CA-3000

    Never used! my mother and I practiced twice otherwise not used at all. Best offer.
  7. N

    my dad is tortured with saliva/mucus - need advice...

    He wakes up in the middle of the night choking on saliva and nothing helps. I mean - the only thing he tries is cough it out, and of course this doesn't help. His doctor - an anestesiologist with no experience with bulbar ALS, doesn't have any advice. My dad suffers so much he now often says he...
  8. O

    What do I need to know to prepare for the cough assist machine and the trilogy?

    At Clinic today, I was told it is time for the cough assist machine and the trilogy machine. What should I expect and be prepared to do? I guess this is my first "big step" into the abyss and I am overwhelmed. Does anyone know if medicare advantage plans cover this? Will my husband and I be...
  9. M

    Newly diagnosed, need advice

    My husband was diagnosed with ALS Jan 2018, onset symptoms started Feb 2017. He first had cramping in right calf muscle then foot drop. His right leg started wasting away shortly after and he lost 40-50lbs within months. He began to have trouble breathing in Aug 2017 just 7 months after onset...
  10. L

    Mods to RV

    While my work may have limited use for other PALS, hopefully someone will benefit. I purchased the specific RV with it's 8 x 12 ft garage for its adaptability. I removed the two queen beds, but kept the electric lift. In the first picture, I have installed a twin bed with electric leg and...
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