coping

  1. L

    Flail Arm Syndrome

    Hello! This is my first post on here and i have been looking for anywhere to ask questions / get advice on ways to help my mum. My mum is 61 years old and has eventually been diagnosed with flail arm syndrome which is a rare type of MND. As it seems to be, it took quite a while to get to this...
  2. C

    Mother in law newly diagnosed with bulbar onset

    Hi, my mother in law is in her mid 50s and after a couple months of tests has been diagnosed with bulbar onset ALS. My in laws told my husband and I on Monday in their home and my husband is not talking about it or really acknowledging it since and Im concerned. Ive told him we should go over...
  3. S

    Mum has MND. We are struggling.

    Hello I wish I had found you all sooner. On 21 October last year (2014) my sister and I took my mum to a (another) specialist in Sydney. She had been treated for 2 years for CIDP. She stopped work and she and Dad put their lives on hold basically to "get mum better". She had IVIG, plasma...
  4. M

    I wonder if there are windows in Heaven?

    hello.. My name is Katherine..My mother lost her battle with ALS in May of 2009. Here is our story. My mothers name was Susan :) She was a registered nurse for around 20 years. she was the type of person who made you feel warm and wanted by just being around her or in her care as a nurse. I am...
  5. ShiftKicker

    New kid

    Hello- Just thought I'd introduce myself here. I had asked a few questions on the DIHALS thread previously, but am now reluctantly part of the general population here. I have been told by two separate neurologists, one of whom is a BC ALS clinic director, that I have either PLS or UMN onset ALS-...
  6. R

    Anxious about symptoms

    Hi all, I am here because, naturally, I am worried I might be exhibiting symptoms of ALS. I know it would be rare to have it at my age [25 years] and my gender [female], however, it does happen. I haven't been exhibiting symptoms, knowingly, for very long. I have had a few leg cramps over the...
  7. S

    Whey Protein+BCAA's

    Hi all, First, I would like to send peace and love out to those of you coping with ALS. Personally, my uncle has been affected with motor neuron disease (currently has aspiration pneumonia). I am happy so many have been made aware of ALS/MND through the "Ice Bucket Challenge," even if not all...
  8. adozi

    Staying Mentally Strong After an ALS Diagnosis

    I think this warrants its own post. Hope it helps people! "Dealing with any chronic or terminal illness is challenging for anyone. It's OK to not be OK with it," said Kraunelis. "The hand that’s dealt to us isn’t always fair. But how we play that hand is within our control. We can choose to...
  9. B

    Just Diagnosed Today 6/17/14

    Hello, I'm joining this club as of today. My Doc is putting me on riluzole. This is indeed an emotional roller coaster! I was diagnosed in less than a month and I'm reeling from all this. I go from denial to despair. My husband, the same. This is a VERY upsetting time. I have this picture in...
  10. O

    Need help

    Hi my Name is Paul i am 24 years old born 03 of January 1990 I have joined this forum today after moths of suffering and problems ill explain how this all started on the 13 of February this year i went to sleep after a long shift in work when i awoke i had unusual pain in my eyes the symptoms...
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