coping

  1. L

    Flail Arm Syndrome

    Hello! This is my first post on here and i have been looking for anywhere to ask questions / get advice on ways to help my mum. My mum is 61 years old and has eventually been diagnosed with flail arm syndrome which is a rare type of MND. As it seems to be, it took quite a while to get to this...
    • laurenv
    • Thread
    • advice age anxiety arm back breathing coping diagnosed diagnosis early feeling weak flail arm syndrome getting a diagnosis ignore information mnd questions testing tests unsure wrong
    • Replies: 11
    • Forum: General discussion about ALS/MND
  2. C

    Mother in law newly diagnosed with bulbar onset

    Hi, my mother in law is in her mid 50s and after a couple months of tests has been diagnosed with bulbar onset ALS. My in laws told my husband and I on Monday in their home and my husband is not talking about it or really acknowledging it since and Im concerned. Ive told him we should go over...
    • cam54
    • Thread
    • ability advice als bulbar bulbar onset coping denial diagnosed newly diagnosed onset research slurred speech speech tests
    • Replies: 7
    • Forum: Newly diagnosed
  3. S

    Mum has MND. We are struggling.

    Hello I wish I had found you all sooner. On 21 October last year (2014) my sister and I took my mum to a (another) specialist in Sydney. She had been treated for 2 years for CIDP. She stopped work and she and Dad put their lives on hold basically to "get mum better". She had IVIG, plasma...
  4. M

    I wonder if there are windows in Heaven?

    hello.. My name is Katherine..My mother lost her battle with ALS in May of 2009. Here is our story. My mothers name was Susan :) She was a registered nurse for around 20 years. she was the type of person who made you feel warm and wanted by just being around her or in her care as a nurse. I am...
    • missMymom
    • Thread
    • ache als back children coping cry crying diagnosed eyes father food goodbye grace heart hope life pain peg story treatment wanted
    • Replies: 5
    • Forum: In memory of
  5. ShiftKicker

    New kid

    Hello- Just thought I'd introduce myself here. I had asked a few questions on the DIHALS thread previously, but am now reluctantly part of the general population here. I have been told by two separate neurologists, one of whom is a BC ALS clinic director, that I have either PLS or UMN onset ALS-...
    • ShiftKicker
    • Thread
    • arm bulbar clinic coping diagnosis dihals grace hope motor neuron disease onset pls questions symptoms umn unsure
    • Replies: 19
    • Forum: Newly diagnosed
  6. R

    Anxious about symptoms

    Hi all, I am here because, naturally, I am worried I might be exhibiting symptoms of ALS. I know it would be rare to have it at my age [25 years] and my gender [female], however, it does happen. I haven't been exhibiting symptoms, knowingly, for very long. I have had a few leg cramps over the...
    • reanne2489
    • Thread
    • advice age als anxiety atrophy back bed clinic clonus coping cramping cramps crying early emg family fasciculation fasciculations female foot drop heart ice lift lyme lyme disease mri muscle neurology night onset pain pls progression shower sleep spasms symptom symptoms symptoms of als testing tests twitches twitching ultrasound update weakness worried wrists
    • Replies: 18
    • Forum: Could this be ALS?
  7. S

    Whey Protein+BCAA's

    Hi all, First, I would like to send peace and love out to those of you coping with ALS. Personally, my uncle has been affected with motor neuron disease (currently has aspiration pneumonia). I am happy so many have been made aware of ALS/MND through the "Ice Bucket Challenge," even if not all...
    • scl025
    • Thread
    • als als? bucket challenge coping ice ice bucket challenge information lead love mnd motor neuron disease muscle nih nutrition onset pneumonia stress supplement supplements video wanted
    • Replies: 2
    • Forum: General discussion about ALS/MND
  8. adozi

    Staying Mentally Strong After an ALS Diagnosis

    I think this warrants its own post. Hope it helps people! "Dealing with any chronic or terminal illness is challenging for anyone. It's OK to not be OK with it," said Kraunelis. "The hand that’s dealt to us isn’t always fair. But how we play that hand is within our control. We can choose to...
    • adozi
    • Thread
    • ability age als anger balance coping dad denial depression diagnosis driving early family healing heart helpful hope ignore improvement information life love mental health natural person with als problem questions stages support treatment
    • Replies: 13
    • Forum: General discussion about ALS/MND
  9. B

    Just Diagnosed Today 6/17/14

    Hello, I'm joining this club as of today. My Doc is putting me on riluzole. This is indeed an emotional roller coaster! I was diagnosed in less than a month and I'm reeling from all this. I go from denial to despair. My husband, the same. This is a VERY upsetting time. I have this picture in...
  10. O

    Need help

    Hi my Name is Paul i am 24 years old born 03 of January 1990 I have joined this forum today after moths of suffering and problems ill explain how this all started on the 13 of February this year i went to sleep after a long shift in work when i awoke i had unusual pain in my eyes the symptoms...
    • Owen25
    • Thread
    • back bed brain breathing coping diagnosed early eyes fasciculations life lump meds mri muscle muscle twitching neurologist night pain problems research scared sleep support symptoms twitching vision work
    • Replies: 18
    • Forum: Could this be ALS?
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