Thank you for being here. We were Diagnosed Christmas 2015. We are new to all of this. He has a hard time coping due to living a productive life before. I am having a hard time coping, since he is not able to cope. Watching him Deteriorate is the worse thing of this nasty disease. I need coping...
Yet, what choice do I actually have.
Brian was diagnosed 6 months ago. He has a weaker left hand and has progressed to using a cane, mostly to to strength and balance issues with his left leg.
Lately, I just can't stand it. I wound up crying in my bosses office just mentioning that my husband...
My husband had an EMG yesterday and his Neurologist referred him to our local ALS clinic. He has had a negative MRI of the head and neck. We are waiting that apt at Emory. I have read the second opinion thread. To say the least I am overwhelmed with possibilities. He started this fall...
Hello all,
I have a question for the forum, and would like as much feedback as possible.
I have been dating someone now for about 3 months. The chemistry has been very good between us and we've really hit things off well. She saw me fall recently and was very concerned, mostly because the...
Hi all again.
Hope you are all happy and coping as well as possible.
My anxiety is a lot better now and all my 'symptoms' linked to ALS (or so I thought) have gone. However I still have thought in my mind that my grandad may have started the genetic ALS and will pass it down.
Would this...
Life has gotten in the way of my spending much time here lately and, when I do come to the Forum, I mostly read since I truly have no sage advice to offer folks here. However, I did want to take at least a little time to offer my thanks and gratitude to the many who share their experiences here...
Hi all,
I'm currently beside myself and would like your opinion please. I have a strong family history of mnd. My father, grand father, auntie and cousin all died with 9-12wks of diagnosis. Very rapid progression....
The last 2wks I've had lots of twitching in my body and predominantly in my...
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Some days are shit. And sometimes you get a bunch of them in a row. And sometimes it gets too much, and there is crying and gnashing of teeth.
I saw my psychologist. I said "I'm not coping very well".
She said:
What kind of person deals with this without getting upset?
The only way through...
Hi there. I have been wandering around this site for quite a few months reading the different posts and just recently became a member. I am extremely sad to see the pain that so many individuals and families are going through in living with this disease.
I'm not sure why exactly I am...
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My husband was just diagnosed with ALS. Symptoms started in December but seem to be moving quickly. He just turned 65 and has always been on the go. I'm trying to do one day at a time, but am overwhelmed with the big picture. It's scary to see what's happening to him & how it's affecting him...