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Hi everyone, My brother just went home after giving our Dad his shower. My brother comes every other day and takes Dad into the shower and gives him a full/real shower. It's becoming increasingly difficult to do and tonight he told me that it is time to call Hospice, for our father's sake, and...

Dear everyone, I'm so glad I found this forum -- since doing so a couple of days ago I've been reading through your posts and getting lots of helpful information and comfort. What I've been missing, so much, these past months is interaction with people in the situation I and my family are in...

As you know Dick passed away on July 15th. I just wanted to share this with you in hopes it may bring some comfort to all of you. On th 13th Dick and I were talking in the bedroom. He had his bi-pap on and we were having a normal conversation when out of no where he said "My Mother and Father...

Well, we had our family reunion and it was wonderful. It made Dick so happy and everyone was so loving and caring. Today the hospice social worker came and Dick asked her about assisted suicide. It is legal in Oregon. There is an advocacy group in Portland who will help with it. They locate a...

I am trying to load my litewriter with 26 sentences or words that you would use the most in conversation and I guess I have lost my mind, cause when I sit down to do it I can't think. Can anyone help me with this or refer me to a list. Thanks in advance. Hope everyone is having a good day...

Annmarie, you asked for it....you guys up for a little story?! Well, I started off with a generous dose of anxiety. I noticed it kick in about fifteen minutes from the hospital. So, I popped a Xanax. It didn't do much. After walking about 1/2 a mile through the university to the clinic...

Hello all- As some of you may know, my mom (diagnosed Sept. 06) lives with me and my family for the time being. She's at the point where I need to get some equipment to make her life easier. Thanks to the great advice I've gotten from all of you I am working with the MDA to get her a...

Does anyone know of a neck brace that actually works and doesn't hurt or irritate the chin? My father's chin touches his neck, so that makes eating, conversation, etc. difficult. He doesn't seem to have bulbar symptoms, but he can't hold his head up. We tried a neck brace that the doctor...

I have been going to several neurologists for 3 1/2 years now. I have had two EMGs - the most recent in Jan 2005 on my right leg that was clean. My symptoms started two and a half years ago with muscle cramping and slight fatiguing of my right arm. At times I could barely type without...