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  1. Chincoteaguer

    Sleeping and tube feeding

    Sibyl has been sleeping a lot these past few days and definetly losing her concentration - she picks up her white board and magic marker and then just lays them on her stomach, etc. I have been letting her sleep thru her feeding times and when she does wake up she will only let me feed her...
  2. C

    Still having problems

    Hi I’ve posted twice before but the threads have closed! I’m still having problems with my speech which is my main concern nobody has mentioned it to me but during conversation I can see them screwing up there face as if to say what are you on about! My nose feels constantly blocked but no...
  3. Clearwater AL

    Decisions...

    (I questioned whether to post this or not. Some may take it wrong but it may bring some conversation to this sub-forum. And… I’m not sure what sub-forum it belongs. Mods… move it if need be.) This is about decisions many of us face. First, I no seek of sympathy, Ann and I have been very...
  4. Clearwater AL

    Two doctors... adult content

    At a huge physicians convention at a swanky convention center after the meeting it was an open bar. A female doctor and a male doctor struck up a conversation, enjoyable and with both having several drinks, the conversation eventually turned intimate. Late into the evening they decided to go...
  5. J

    Ongoing ALS concerns...

    Hi all, I'm really, really sorry for posting again - my old thread got locked automatically which can be accessed here - https://www.alsforums.com/forum/do-i-have-als-als/40349-another-bulbar-als-thread.html My current symptoms all remain or getting worse since this has started 4 months ago...
  6. L

    18 years old.

    Hi, everyone, before I say anything, let me say that I’m a REALLY anxious person. I have really bad social anxiety, health anxiety, basically any form of anxiety. About 8 months ago, I ended up getting this bad pain that basically started at my lower back, that migrated to my left arm, to the...
  7. N

    Family member positively reflecting on life and loss

    I hope this post is appropriate for this section, but I wanted to briefly share a personal reflection of my experience during my father's battle with ALS and what I hold dearest to my heart after losing him. The topic of ALS can be a sad discussion, it is sad. But, as odd as it sounds, after I...
  8. Atsugi

    Privacy for PALS

    Sometimes I see CALS commenting in the PALS forum. I always thought that the forum called "People with ALS - PALS" was a place where PALS could speak to each other without CALS being part of the conversation. I know the "CALS" forum sometimes contains posts that are really meant only for CALS...
  9. F

    tech support

    Dear Tech Support, Last year I upgraded from Boyfriend 5.0 to Husband 1.0 and noticed a distinct slow down in overall system performance -- particularly in the flower and jewelry applications, which operated flawlessly under Boyfriend 5.0. In addition, Husband 1.0 uninstalled many other...
  10. pdcraig

    Need some advice and a bit of a ramble

    It's been a long time since I last posted. My PALS is still hanging in, defying all predictions. It's sometimes hard to believe it's been over 5 years. He's reached the point where swallowing is a real issue. No PEG, he won't consent. He's saying he is choking on his saliva all the time. When I...
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