confusing

  1. T

    Neurologist's confusing response after EMG

    My father just had an EMG by a neurologist who told him last week that he suspected ALS after observing tongue fasciculations in addition to his other symptoms. MRI clean. MG & Lambert Eaton, MS ruled out as well as Friedriech's Ataxia, which his brother had and died from. Quick back story. My...
  2. M

    Specific question regarding pain and twitching

    I've spent some time looking at some threads, etc. but wanted to pose a question or two. My issue started a few months ago (Jan) where I was at lunch and a glass slid from my hand which typically I wouldn't think too much about. I then got home and poked around and did some research as I...
  3. M

    Advice needed regarding EMG/NCS , sorry long post

    Haven't posted here for a while. Had repeat EMG nerve conduction as I've felt my symptoms are progressing. Neuro said his exam was normal ( although I'm not sure mute plantur response is) Nerve conduction shows mild reduction of velocity with normal amplitude ( left ulnar nerve,) Mild slowing...
  4. J

    Genetic testing

    My husband Jon just received his confirmatory bulbar ALS diagnosis at the University of Rochester today. He has 3 relatives on his fathers side (2 female first cousins of his father and a child of one of the cousins) who had ALS. My mother in law does not have specific details, but knows they...
  5. Nikki J

    Where should I post?

    I think sometimes people are not sure or have different ideas. Aside from the rule that DIHALS stay in DIHALS it can be confusing and there are not hard and fast rules. Some categories are pretty clear like in Memoriam. Others not so much. For most ALS issues if you are looking for...
  6. L

    New Member

    Hello everyone. I wanted to officially introduce myself to the forum. I was diagnosed with ALS on March 23, 2016 after a long confusing journey that had lasted about a year and a half. I am 42 years old and live in Cincinnati, Ohio with my wife and two children. While this is not the path I...
  7. N

    Trials/Treatments/Supplements - What works for you?

    Hi, Would anyone mind sharing what trials, treatments, or daily supplements you are on and feel are benefiting you? My husband and I are trying to come up with some sort of plan and seem to be at a loss. Everything seems so confusing. I appreciate it immensely. Thank you. -Nikki
  8. A

    Confusing EMG appt

    Hi, Last I wrote my husband had an appointment with his new neurologist where he had diagnosed him him with bulbar palsy (per report we received) and was questioning bulbar onset ALS. This past week he went and had an EMG. We are so confused now because at the end she said she was thinking...
  9. P

    Confusing atrophy

    Dear all, I am hear seeking your advice (so far i have not been diagnosed with ALS). Shortly to my story. It all started with tigh twitches in october 2015- this twitches then spread over the whole Body (still today); furthermore i have symmetrical muscle wasting (neck, hands, arms, thighs...
  10. K

    At a stand still...

    All of you are very smart and I am not sure how I should approach my neuromuscular doctor. We are very disappointed in the clinic we are using. The first major problem happened in November after a clinic visit in October there was talk of a muscle biopsy the nurse called me and asked me to come...
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