confusing

  1. Erika

    A different poop situation

    Hello everyone, In the past weeks my mom has experienced an interesting symptom. Some times during the day or night, she feels like she has had an accident, but when we lift to clean her up, there is nothing. Not pee, not poop, not sweat. It's confusing to us and upsetting to my mom. She says...
  2. A

    PLS and ALS

    Hello, I just received my ALS diagnosis from the Mayo but the wording is a bit confusing. Diagnosis: Given and that she has subtle lower motor neuron involvement she meets el Escorial criteria for clinically possible ALS, but her phenotype is more consistent with PLS. At this time I hope that...
  3. A

    Finally have an answer

    Hello all, I received my second opinion at the Mayo Clinic this week and it is technically ALS. My neurologist was sure it was PLS due to the slow progress but my EMG showed a very small amount of lower motor damage. It is confusing but here is my diagnosis: "Diagnosis: Given and that she has...
    • andirai
    • Thread
    • als clinic confusing diagnosis emg hope life neurologist pls possible als progression second opinion slow progression
    • Replies: 7
    • Forum: Newly diagnosed
  4. L

    Crazy With Worry

    Hello all, I'm currently driving myself crazy with worry, and hoping some on this forum will be able to help me see my confusing symptoms more clearly. I am obviously hoping I do not have a serious disease, and I have read the stickies (multiple times). I'll start with some background...
    • LibbyB
    • Thread
    • anxiety arm atrophy burning confusing cramping cramps driving emg eye foot foot drop hip medicine neurologist pain physical therapy scared spasms symptoms twitches twitching weakness work worry wrist
    • Replies: 4
    • Forum: Could this be ALS?
  5. swalker

    Low CO2

    I had my most recent Arterial Blood Gas (ABG) and spirometry yesterday. The results are a bit confusing to me and I would appreciate any insights you have to help me understand the implications of the results. The spirometry showed an FVC of 21%. This is a slight decline from 6 months ago...
  6. J

    Unsure if ALS - Some signs are confusing

    Hi everyone, For the past 2 weeks I have noticed fatigue in my left forearm which effects my hand. I can still do everything I normally could it's simply uncomfortable to do at the moment. My question regards the feeling in my muscles which is now in my shoulder, forearm and hand are rather...
    • JasonW
    • Thread
    • als anxiety confusing fatigue keyboard muscles reading shoulder unsure weakness work
    • Replies: 3
    • Forum: Could this be ALS?
  7. D

    Improvement in ALS??

    Hello friends My father was diagnosed with MND in April 2016 having weakness in hands and diaphragm. He later also tested positive for Lyme's and was given doxy. We saw some improvement but then his condition started getting worse. In August he had respiratory failure and was on ventilator...
    • dvjcool
    • Thread
    • als als? bipap confusing diagnosed diaphragm emg father improvement lyme medical mnd night reflex respiratory symptoms tests therapy ventilator weakness
    • Replies: 4
    • Forum: General discussion about ALS/MND
  8. A

    Second Opinion Confirms ALS

    Hello everyone. I have been recently been diagnosed with ALS through a second opinion. Obviously things are very confusing right now and have yet to set in. I am still extremely hopeful that this is a misdiagnosis and will be seeking a third opinion. A little history about my journey to this...
    • Albert1976
    • Thread
    • advice als arm atrophy brain confusing diagnosed early emg exercise finger lift misdiagnosis mmn mri muscles neurologist onset pain person with als second opinion shoulder test tests twitching
    • Replies: 3
    • Forum: Newly diagnosed
  9. A

    Fals sod1

    Hi all, My husband & I are going through ivf to start a family. We just got the results of our embryo today & it's affected which means my husband 100% has a mutated SOD1 gene. What's confusing me is that no one in his family has it & no one in his extended family either! How is it possible for...
  10. Jhettinger

    VA What should I expect to receive from VA

    After reading all the post regarding VA Medical Support I have some questions for the audience. Atsugi thanks for your guide. I read that an ALS team would be appointed to my case. My VA PC Dr said she is that team leader. I am confused, she knows nothing about ALS. First visit she told me...
Back
Top