confusing

I asked our resident expert (Jamie of course) about this but wanted to see what others think too. As you know, my first EMG showed abnormalities (+ve sharp waves and fibs) - they physiatrist who did it said it meant that I had a cervical radiculopathy (the MRI done after this said NO...

iF ONE READS ALL THESE POSTS ABOUT BEING DIAGNOSED WITH PLS. AND FINDING SO MANY DIFFERENT SYMPTOMS ,SOME WITH FAST PROGRESSION SOME WITH SLOW ,SOME WITH LOCALIZED IN ONE AREA SOME WITH MULTIPLE AREAS . BUT WITH FEW WITH EXACTLY THE SAME ,THIS WOULD LEAD ONE TO SAY ,WHEN DIAGNOSING AND NONE FIT...

Hey everyone. Sorry to have been absent for a while... was busy graduating and starting grad school and visiting lots of doctors with T. It has been crazy. The time in a day keeps getting shorter and shorter. :) Well... my question is has anyone taken a LONG plane trip before while having...

Hi, I successfully flew with my bi-pap! We figured it out after hours and hours of going round in circles with trying to figure out which battery. The battery route was confusing and ultra cumbersome (almost the size of a car battery!). Hopefully this will save you time. Here are the steps...

Hello all, I thought it would be interesting to know each of your stories (again) on some, but this time in context from start to present, possibly timeline, highlighting important times, such as symptom to diagnosed (or un-diagnosed) to current. I'm particulary interested in: 1) Symptomps...

Hi everyone My Dad is 77 and has been diagnosed with ALS for just over a year now. He has been on a bipap machine for 9 months and only takes it off now for small periods of time throughout the day (just to eat). His doctor has been increasing the pressure of the bipap machine now...

Since joining, I have had difficulty in trying to understand the organization of this website. Are there any clear, concise instructions which might help. Do others find it as confusing as I do? Clearly it is very valuable to all of us to participate. I would appreciate any guidance about...

I am a caregiver for my stepmom who was diagnosed with ALS in August 2006. Her symptoms started mainly with speech and swallowing -- she had a stroke 18 months prior to her diagnosis and had lost use of most of her left side so some of the leg/arm symptoms were masked by the stroke. We lost my...

Hey tHere, i kind of want to stay annoymous for tHe time being. my uncle was recently diagnosed with als and i don't want him to know that i know yet. my main question is how do i Help him, like wkat do i do around him. i want to Help but i don't want it to look like i'm babying him because...

:D hi I just recently joined this website, my younger brother (39) was diagnosed with ALS this past year. He is deterating so fast, in one year he has no use of any of his limbs, he can move his head and neck only, he is confined to an electric wheelchair all day for his comfort, he is choking...