confused

  1. B

    What does all this mean??

    I'm so confused. I was going to attach something to a former thread, like you said, and saw the following at the bottom. So, I guess I'm not supposed to post anything more on this one?, OR I'm to start a new thread? OR, am I not welcome here anymore? B. You may not post new threads You...
  2. S

    Im confused about my EMG

    Hello Everyone, First I want to say thankyou to everyone on this forum that has been affected by this disease, whether they are a Pal, afamily member, or friend. Your strength makes you all gods amongst mere men. 2nd, if after reading my post, if you feel I shouldnt be here than tell me to...
  3. D

    Emg questions part 2

    Hello, I would've reffered to my last post but due to time it was closed so I'm back reporting my results from April 2018 from Houston Methodist. The NCS/ emg were basically the same as 6 months prior, emg still showing chronic denervation with partial reeinnvation and NCS showing 40% slowing...
  4. M

    Experiences/Advice on Clinical Weakness please?

    Good evening everybody. Gratitude in advance to anyone who reads this, or takes the time to respond. From reading all the stickies, I seriously doubt I have ALS. My heart goes out to those that do. That said, there is so much knowledge and experience here and if possible, I would like to pick...
  5. T

    Seeking Advice From PALS and/or Recently Diagnosed

    Hello - I have been experiencing neurological symptoms since around January. It started out very sensory in nature but over time, there have been some issues with my left hand/arm that have created some other concerns. Let me state the following because I am looking for insight as to what my...
  6. C

    Please share your experience at ALS clinic - very frustrated!

    Hi all! We’ve only been to our ALS clinic once to meet neurologist and clinic nurse which was two weeks ago. During the visit we inquired about a couple trials my Dad may be interested in as well as treatments Riluzole and Edaravone. The Neurologist and Nurse said they could give us no advise...
  7. R

    Bulbar Onset MND

    Hello there, I’m Karen, I’m 53. My problems started a while ago and I have been so confused, upset and angry with doctors since this has all began. I really don’t think I have MND, or maybe I’m in denial but it just doesn’t add up to me. I would really like your opinions and guidance, it would...
  8. M

    Bulbar als?

    Reading through this forum I do feel a bit silly posting this, but thank you for anyone taking out any time to respond, it means more than you know. For about a month and a half I've been having issues swallowing. I swallow, and the food stops like partway down my throat, or at least some of it...
  9. A

    It's been a journey and i'm suspicious

    Hi everyone My name is Alan Rodriguez,I'm 26 years old, I'm Mexican and currently living in the country's capital. I've read the obligatory post to read before creating a thread, i do this to know your opinion and to be heard more than for my peace of mind, i hope I'm not breaking any rules...
  10. H

    Confused and scared - any guidance much appreciated

    Hello all, I first want to extend my sincere appreciation for the support offered on this forum. I don’t think I could show the bravery, class, and kindness that many of you display so well in the face of adversity. Please know that I am so grateful simply for the opportunity to express my...
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