confused

  1. Doglady

    PWC, doors and hallways

    For the past month I've been using a power wheel chair loaned to me by the local ALS Association that is exactly the same as the one that is being ordered for me. My wheel chair is a little less than 25 inches wide and if i go slowly it does fit through all of my 28-30 inch doorways and...
  2. C

    Need assurance and guidance

    Hi guys, its me again. Im sorry for writing here and I know I should not be lurking here since Im most likely not belong on this site. But I do have some answers I would like to ask you about my current status, and I really hope that Im not disturbing or offend anyone by doing this but my body...
  3. M

    New consultation on als

    Hi..my neurologist is sending me to a als specialist..have had tongue atrophy and slurred speech for over a year..also have hyperreflexia and neuropathy in left foot..some stiffness in left calf..I'm scared..I don't feel like I'm dying?? Otherwise I am healthy...I'm just confused and weepy..any...
  4. C

    Should I Get A Second Opinion?

    Good morning, My name is Chris and I am a 29 year old male. This morning I saw my PCP and advised him of my concerns about ALS. My symptoms are as follows: 1) Very noticeable twitching that lasts for a few minutes in each elbow, each forearm, left shoulder, right thigh, and right foot. 2) Each...
  5. Kristina1

    funny fasiculations

    Every time they take my BP the machine gets confused by my fasiculations. Yesterday at a visit the machine read my pulse as 170, the research nurse and I both had a laugh and she said she's pretty sure your heart would explode if that were a rel value! The machine counts my twitches as pulse...
  6. M

    MND diagnosed in March 2018

    Hi, My father in law Age -73 years diagnosed with Bulbar symptoms in March 2018. He was feeling slight dragging of foot and speech issue for more than a year, but after several doctors visits he was adviced for some voice exercises with reason of 'sound box issue due to age' but after more...
  7. M

    lost and need advice / opinion

    Hi everyone, I’m Maxime from France and I’m 39, have a past of intensive sports practice (but I smoke), tall and apparently strong – 1,93m, 110kg. First, I wanted to congratulate you for your wonderful empathy and the time you take to support those who desperately need it. It's pleasant to see...
  8. M

    Is this bullbar ALS?

    Hi @ All, first I would like to introduce myself. My name is Mike I am 34 years old. I have some worries and questions and really hope that you could help me. So let´s start in 2007. When I was 23 years old, so it means nearly 11 years ago I have started with muscle twitching. In that time...
  9. B

    What does all this mean??

    I'm so confused. I was going to attach something to a former thread, like you said, and saw the following at the bottom. So, I guess I'm not supposed to post anything more on this one?, OR I'm to start a new thread? OR, am I not welcome here anymore? B. You may not post new threads You...
  10. S

    Im confused about my EMG

    Hello Everyone, First I want to say thankyou to everyone on this forum that has been affected by this disease, whether they are a Pal, afamily member, or friend. Your strength makes you all gods amongst mere men. 2nd, if after reading my post, if you feel I shouldnt be here than tell me to...
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