conference

  1. A

    Nordic Conference Videos

    Hi, A few weeks ago the Nordic Conference on Motor Neuron Disease (MND) and Meeting of ALS/MND alliance was held in Oslo, Norway. The program can be found at the following site http://sell.hil.no/als/program.html. The actual videos of the presentations in English can be found at the site...
  2. T

    What should we ask neurologist?

    My father-in-law was diagnosed with bulbar ALS almost 2 weeks ago. We have an appointment Monday afternoon that is basically a conference with the family to go over any questions we may have. Truthfully, we have no idea what to ask. After his EMG the day of his diagnosis, the neurologist told...
  3. Jamiet

    For those of us in unknown land...read this...

    I'm not trying give anyone false hope here, only posting what i find to be real, geniune stroies, i've spoken to two of these personnaly. Pay close attention to who wrote the thread, you will see a chain of progress from a few people. For those of us, who are in unknown land (Normal EMG, NO...
  4. Montana Carol

    Montana Icebreakers Conference (als 101)

    A one-day informational conference for families, patients, and health care professionals who are interested in learning more about ALS. When: August 17, 2007, 9am-4:30pm (includes lunch) Where: Rehabilitative Institute of Montana Community Medical Center 2827...
  5. T

    ALS Website

    For those who may not have noticed, ALS Ontario and ALS Canada has now added this forum onto their web pages as a link. ALS Canada shows it in a drop down box. When Lee, Grampal's wife and I attended the provincial conference, Lee asked why they no longer supported the forum site. After a fast...
  6. T

    Lifespan Respite Care Act Passed by the Senate

    Received this email today, and wanted to share: -------------------------------------------------------------------------------- The Amyotrophic Lateral Sclerosis Association, Capital Office 601 Pennsylvania Avenue, NW, Suite 900, South Bldg., Washington, DC 20004 (202) 638-6997 * Toll-free...
  7. J

    Update on Dad

    Hi, Took my Dad to see a specialist last Tuesday. This doctor did a physical examination of my dad and then did and EMG and NVC tests. He had my dad in his office for about an hour. Lots of questions for my dad that he answered as best he could. At he end of the hour he told my dad that he...
  8. L

    Road Trip!

    In the weeks following my preliminary diagnosis back in February, I was thinking about some of the things I wanted to do but hadn't yet done. One of those things was to take a cross-country train trip. I was scheduled to attend a conference the first week in May in New Orleans, and decided to...
  9. E

    Dad's gone to an inpatient facility

    Good evening everyone-- Last night, Dad entered a respite facility for hospice patients. They're planning on keeping him only 5-7 days max, and this was in the works for a while before a bed came open for him. So far so good, except for the middle of the night last night. No one seemed to...
  10. rcharlton

    ALS possibly triggered by visit to Water Park

    Here's a good one... I was diagnosed with "probable most likely” ALS a few weeks ago...needless to say that this has turned my world upside down...even though I am feeling pretty positive these days and I am not about to let this beat me... So far it's affected primarily my right side - most...
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