conference

The ALS Association Advocacy Department would like to invite people with ALS and their family members and caregivers to join us for an informative webinar about the new health care reform law enacted earlier this year. The webinar will provide a general overview of health care reform and will...

And so the doctor said ……… "It's too soon to know". After two years it's an incongruous turn of phrase. My reaction is an all too familiar paralysis, giving way over a day or two to a turbulent mix of fear and hope. Fear that Diagnosis-Day is still to come at some point in the future, and...

Bobbi Greenberg of the ALS Society of Canada asked that we pass along the following information. Should any of you take the time to attend this online information session regarding the Ceftriaxone for ALS clinical trial please be sure to post your thoughts and commentary A clinical study of...

Hey I have mentioned it before on this forum, but Last month my Neuro hubby came back from an MS conference in Sydney where they discussed an MS study that is using diethyl fumerate on MS patients. It is in phase 3 clinical trials. The study will be nearing completeion in the next 6 months. I am...

I met a blind lady at our church. And there is such a lot wrong with that statement, most of which I am only just learning. As I think back to the first time I met Jeanette a few months ago, I am chastened to realise that I didn't learn her name for several weeks. I'm poor at names; I know...

I was at an ALS seminar yesterday put on by the local MDA. The information was interesting although a bit discouraging, some promising stem cell treatments but years away. But what I want to rant about is the feeling of being a second class citizen even here at a conference devoted to the...

I thought that this might be helpful for those of you planning to attend. :):) We won't be going, no way to pay for the trip and expenses. REMINDER: Advocacy Day Deadlines Dear Kay Marie, Have you registered to attend the 2010 National ALS Advocacy Day and Public Policy Conference May...

Join a Call About New American Academy of Neurology Guidelines on ALS Care Patients and caregivers interested in the new guidelines issued by the American Academy of Neurology will have the opportunity to join a free audio-conference call sponsored by the Academy and The ALS Association. The...

Many of you might have read this but for those who haven't ....... ALS TDI Presents Latest Data at International Symposium in Berlin 12/17/2009 This December 8-10, nearly 900 researchers, neurologists, clinicians and others involved in the care of people living with ALS gathered in Berlin...

This is a copy of the email that I received on 8 October 2009. Please if you have the energy, CONTACT your members of Congress and your state politicians! WE STILL NEED FUNDING for the REGISTRY! My name is Jeff Faull and I am the married father of two beautiful daughters. I was...