communication

The post in general forum about eye lid surgery frightened me. I was under the impression that all or vast majority of pals can use eye gaze communication indefinitely despite body becoming fully paralyzed. At this stage in my disease my feelings are that I want to continue to live for as long...

This passed 3 years ago and stopped medicare from making speech generating devices rentals. At the time this was a new policy ( before as it is currently devices were purchased and yours to keep) Renting meant if you went into hospice or had to be hospitalized the eye gaze or whatever was...

ABOUT: I am selling a speech generating device with the world's #1 eye tracker used by my father. Bought Q4 2016, it was used for 2 months, it is mint condition, good as new with very practical stand and wireless keyboard included. Price negotiable, worldwide shipping. PRICE: Everything for...

I posted over a month ago and got very helpful advice. I wanted to thank all who replied once again. I spent a wonderful week with my sister. I have to admit there were tears but there was also a lot of laughter. My sister's spirits lifted and we went out for a walk every day to her favorite...

A special friend (David) of mine and my husbands is a 17-year survivor of ALS. David currently has a Tobii Dynavox I-15 (with eye gaze interaction – AAC device) speech generating device. His AAC device is calibrated to his eyes. David was able to communicate (with his wife and family, also with...

I programmed an app for Android devices for communication. For the pALS who can no longer speak and move. So normally use eye control. Since this does not always work, this is a help. More information at Smart Letter Board - Home Have fun and good communication!

hello all, as you can read here https://www.alsforums.com/forum/do-i-have-als-als/40073-mum-diseas-strange-situation.html (a link of my old thread) my mum was diagnosed in Feb 18 with 2nd MND. doctors said that is not possible to see the future but as we see in her clinical history it is...

Quite honestly, I'm trying for days now to make proper use of the search function here but I don't find the concentration to follow through with it. My PALS speech is going quickly and things with health insurance are going slow. Time for improv. We have an old iPad and found out roughly how to...

Hi, I have not posted in some time because I felt like some were thinking I was a hypochondriac and I've actually thought I handled the past year of my life quite gracefully. On 12/4/17 I was dx'd with ALS. Like all, I have been bouncing between all kinds of emotions. I am not back to ask...

Hi everyone, my Dad is now actively dying. He started rapidly deteriorating over the weekend. He couldn't inhale well and was gasping for air. He stopped tolerating his tube feedings and were increasing is morphine and Ativan doses everyday. On Monday the hospice determined that he was eligible...