i currently have a switch with my dynawrite but it is so slow and i can't really converse. is there anything out there better. is eye scanning any better.
I've not seen any information on this forum regarding BOTOX, yes Botox, to help reduce excesive drooling. My wife Tammy has Bulbar ALS and has lost her ability to swallow and speak, she uses a PEG to feed herself and a communication device to speak Anyway, we live in the country and Tammy is a...
My wife, a nurse, was diagnosed on Feb. 14/2006, Valentines Day, with Bulbal ALS. Happy Valentine's Day! Her first symptom was difficulty with swallowing nd some slight slurring of her speech. These symptoms started very shortly after she tripped and fell, quite hard, hitting her head. We...
Just this week my dad has been having problems with his hands. He has a hard time buttoning up shirts and on Sunday the cashier gave him change back he dropped the coins on the counter. To me it looked like he could not control his hand. I personally think he is losing his motor skills in his...
Hi Everyone,
Just wanted to share this with everyone. This was read at my husbands memorial service on 11-14-07 before releasing the doves at the graveside.
This ALS is the beginning of a journey of many changes, and challenges. This disease is a thief, stealing your ability to walk, to hold...
ability
als
christian
communicationcommunicationdevice
cure
death
family
feeding
feeding tube
finances
husband
life
memorial
research
trach
ventilator
walker
wanted
wheelchair
Hi All,
I have an extremely close friend who has bulbar ALS. I'm trying to help with getting her a communication device for speaking.
She has Kaiser insurance, which only works with a couple of the communication device companies, and not the one she is interested in. I know with ALS she is...
Hello all, I am again asking for your help with some new problems my aunt has been having. She is unable to move any part of her body other than very slight movement of her head from side to side. She is also using a feeding tube which is working out very well.
My question is that she is...
Hello everyone, I am new here and I have a few questions that I hope some of you can help me with. I have an aunt who was diagnosed about a year ago with ALS. She does not have any movement in her arms or legs and is now using a feeding tube. She is unable to speak and uses a communication...
I was my husband's 24/7 caregiver. While I did not post very much on the forum, I want you all to know that I read it every day and was encouraged, uplifted and counseled. I found your suggestions and answers to questions and issues that were facing me to be invaluable.
My husband Thomas passed...
Hi Everyone...haven't been here for a while...so much has happened. Last time I was here, my mum was in hospital on so many meds. She wasn't recieving adequate care there & she was brought home. She was still using her communication device with a bit of help, she could move her legs but not...