My Dad doesn't seem to be too "with it" most of the time. He gets "confused" about things, like what day it is. For example, he went out to the car and was ready to go to my sister's for Christmas Eve, BUT that was FOUR DAYS AWAY! He has done things like this on more than just that occasion. He...
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Hello out there,
My mother has bulbar onset ALS so her speech is almost gone since being diagnosed last November. I am attending a support group and we were discussing newer communication devices. My mom does not want anything to do with typing like on a computer. I know there are deviced out...
Hi everyone. I am new to this forum. My husband was diagnosed with ALS in July of 08. He has the bulbar onset and has lots of trouble swallowing and speaking. He has a gj tube and a communication device. He doesn't use the communication device too much yet, but people have trouble...
Hey y'all.
Please help me help my friend with recently diagnosed ALS... We are in a small rural town and she is the only one. We barely have a neurologist.
We have hooked up with a foundation and supposedly they will help us get her a chair and communication device (has trach and PEG, in...
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Below is something many of you may have already found while researching ALS. I was struck by the sheer logical approach this man had to dealing with the disease. I only wish my mother would have taken this approach, instead of fighting everything tooth and nail.
This is an excerpt from a blog...
For Sale- I will pay shipping
SmartNav 3:AT--paid $399 will sell for $125. In great shape my brother used this system extensively. Requires little head movement. Complete computer control. Reflective dots utilize infrared to move mouse- use your existing software!
SmartNAV 4:AT--paid $499...
I am selling a virtually unused Dynavox V, Series 5, North American English Speaking, 256MB Ram, 40 Gig, Speech Device. My mother was diagnosed last year with ALS and her speech quickly deteriorated until she acquired this device to communicate with others. Unfortunately her illness progressed...
My mom was diagnosed with ALS in August. I think its progressing quickly on her. She has no use of her hands or arms. She lives with my dad and he does everything for her. One of our concerns is that if something should happen to him (he has a heart condition) or should he fall, pass out...
My brother's ability to speak is nearly gone. He already has a Dynavox and uses it by twitching his eye or nodding his head to turn lights on/off etc... the problem is that this system hasnt been all that great with frequent malfunctions or adjustments required. I'm a bit apprehensive to pursue...
Greetings. I am a senior at the University of Cincinnati studying Mechanical Engineering Technology. The purpose of my senior design project is to create a communications device for late-stage ALS patients that will enable direct communication between the patient and caregiver. The project...