1. Doing My Best

    Adaptive clothing suggestions?

    Hi all, I am looking for suggestions for adaptive clothing or ways to modify regular clothing to make getting dressed easier on both CALS and PALS. My PALS, Steve, is nearly completely paralyzed from the neck down, and also has limited range of motion in his arms and shoulders. I got a great tip...
  2. M


    My wife is able to stand with assistance long enough for me to prepare her for the commode and to replace her clothing afterwards. We are wondering how to best accomplish these efforts once she is not able to stand without assistance.
  3. D

    Tick all the boxes? Hoping for the best planning for the worst!!

    Hi my name is Daniel, I dont know if I have ALS but reading your posts / threads have helped me significantly on processing everything that has been happening to me in the last month and reading about your strength and sometimes humour during adversity only gives me strength whatever my future...
  4. S

    Food and drinks ruining my clothing

    Hi! I have bulbar onset and have started to have real problems with spillage onto my clothes when I eat or drink (mostly when I drink.). Paper towels don’t cut it anymore. Does anyone know how to make or purchase a coverup or bib? Thank you!
  5. G

    37 y.o. - Long term symptoms, muscle loss recently - please help

    Hi all, I'm a 37 old male finally posting here because I've become very anxious recently. I did read quite a few posts and I understand time is an precious asset, so I really appreciate if you can share your point of view. My symptoms from the most recent, most worrisome to the oldest (I know...
  6. F

    Not Holiday, But Stll OK

    * I don’t understand why prescription medicine is allowed to be advertised on TV or why anyone would think of trying one of the medicines after listening to the laundry list of warnings of possible side effects. But this is definitely an exception! Do you have feelings of inadequacy? Do you...
  7. chally

    Calendar / fundraiser

    What does anyone think ? What started as a clothing tip could easily with collective creative input turn into a source of $ to help someone. As I see it there are some of us with intact sense of humor and are fearless in Displaying it, so.... What's needed? Someone who is a techie and can...
  8. Kristina1

    ladies: help me find a bra!

    I used to wear the "body by victoria" victoria secret bras. I now have trouble unhooking them, and the underwire makes my g-tube uncomfortable. Recommend a bra?? Maybe front closure, underwire-free, and it'd be awesome if it didn't look frumpy and un-sexy. Currently I'm just wearing a...
  9. I

    Trendy adaptive/wheelchair clothes

    Hey guys! I'm doing my senior thesis on re-designing adaptive clothing/update it to fit in with current trends for wheelchair users and just wanted some feedback from a few people and I figured this forum would be the best place to ask! Let me know what are the most annoying things about...
  10. L

    The universe keeps dishing it out.

    We recognized the first anniversary of Kathy's death on December 20. On january 23, the anniversary of her memorial, my father was admitted to the ER with internal bleeding. It was harrowing, as ER admissions can be. He lost half his blood volume. It's possible he had a stroke at that time. My...