Ok.. I said I would not post there unless I have medical confirmation of my state. However, this is driving me crazy and completely took over me. I cannot do anything except for crying all the time.
I started feeling very weird feelings in my right leg since New Year. First of all, it felt like...
UREVIEW
ALS is a complex disease and those diagnosed along with their families are likely to interact with a number of different medical experts and support systems along the way. This part of ALS.net is meant as a resource for PALS and CALS to find those resources, such as neurologists...
Hello
I have a follow up appountment at the ALS clinic next month which I am approaching with a bit of dread. I am scheduled for another emg then as well. There are no real options with regards to second opinions here on the Canadian west coast, so I may look south, should I desire a second...
I am upset, frustrated, and kinda angry. I was worried because none of the ALS clinics have contacted me about an appointment even though the referrala were supposed to be sent June 11. I checked 3 times with my doctors office, and was told they would send the next day. I actually went there 2...
Hi,
We are scheduled for a clinic at Jacksonville Shands with Dr. Pulley on August 18, which is covered by our insurance. We also got scheduled for a Dec. 17 clinic at Jacksonville Mayo after we saw Dr. Boylan last week. Our insurance doesn't cover Mayo but we are on one of the dates at Mayo...
Hello,
One of my best friends of 40+ years was just diagnosed last week with Bulbar Onset ALS and I want to help him in any way I can. We live about 50 miles apart and he is soon to return home to live with his mother. He is 60 years old and cannot speak at all. He is using a walker and...
My neurologist is sending me to ALS clinic for eval. She wants it done ASAP, because of the speed I seem to be going downhill. The problem is that of the 2 closest clinics, my primary insurance only covers 1 and my secondary insurance only covers the other one. Paying out of pocket is honesty...
Hi everyone. I feel like this sounds like a selfish question, but how does a caregiver/family member cope with what is happening? My dad was diagnosed 10/2014 and my parents and brother live in North Carolina. I fly down every 6-8 weeks to visit/go to clinics.
My moods usually seem worse...
I have a unique question regarding financial aid or help I have a friend who was diagnosed a couple of years ago He has a family of 6 in his household Because of the health insurance options were so high he opted out of insurance for himself that pertained specifically to his ALS...
I have an appointment with an ALS clinic tomorrow. I'm nervous about it- originally I was glad to have it. Now I don't want to start seeing doctors again.
I was diagnosed two years ago and haven't been on the medical roller coaster since. I found an ALS support group and was referred to this...