clinics

  1. Lkaibel

    Numbness and Tingling and Clinics

    My PALS said he has numbness and tingling in his feet and toes. He legs have just recently become weak enough to get orthotics (getting fitted tomorrow). He still walks without a can or walker. I heard him complain of some of this a few months back, but he said it is getting more intense...
  2. KatieNBoyd

    Just wondering

    Hello my friends, The words that you all share and the wisdom that you have spread on these forums has been invaluable. I have been told by a friend and his pastor that I will be there at the right time for someone else that is going through this terrible disease and be able to help them. For...
  3. C

    ALS clinics in DC/Baltimore area -- useful for PLS?

    Hi, my husband with PLS-bulbar onset for about 4 years now has symptoms that are worsening. I'm trying to convince him to attend an ALS clinic although he's not sure it would be useful. He has a neurologist (who diagnosed him early on) whom he really likes, but I feel more consultation with...
  4. KimT

    Another RT and more issues

    After a lengthy trial with the first medical supply company for my BiPAP, I ended up sending it back. The RT was so annoyed at the "machine" and "ALS" that she just couldn't work with me. Laurie ended up helping me with the proper settings but either my doctor or the medical company didn't...
  5. B

    ALS CLinic SW Louisiana

    ALS CLinic SW Louisiana or SE Texas I believe I my wife needs a second opinion and that she probably needs to be seen by someone @ an ALS clinic. We have asked her general doctor to get her a referral for a second opinion. We are a few hours drive from Houston, TX and Lafayette, LA I have...
  6. kevinw

    MDA verses ALSA Clinic

    After going to a MDA clinic for 8 years I have been thinking about changing. My ALS Neurologist is top-notch, it's everything else that seems generic. Has anyone pulled off a change of clinics after so long? What did it entail? Would they accept my existing records (two 3 to 4 inch folders) or...
  7. A

    About Multidisciplinary ALS Clinics

    I have been attending every 3 months an ALS clinic. I can see some advantages but also some problems. I understand that this is the modality of attention most recommended, but I wonder if it is the most beneficial for all or just some of the patients. While it is convenient seeing several...
  8. Ed340hp

    Tirasemtiv Updates?

    The history here looks sparse. Any updates? I started with the initial open label dose this week. The qualifying visit seemed to be my clinics first. I am apparently the local test subject, so the visit took awhile to work out the details. My muscles seem a little more responsive, and at...
  9. twitchykitty

    Update re: overnight breathing

    My last thread closed so just a quick recap ( from 6 weeks ago) I added daytime issues I don't breathe well enough on my back when I wake up so I have to roll on my side where it's much easier (but uncomfortable) My last FVC was 33% August 2015 (local dr is chasing the new test up this week...
  10. karla r

    Still working on ALS Clinic

    I am really now unsure where to go from here. Have been trying to keep posts at a minimum, and here is why. Had appointment with my primary doc. He said to keep my follow up with #2 neurologist. If he didn't send me on to the ALS clinic for eval, then go back to the 1st, and see if she can make...
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