I hate to post here. My focus in this forum has been on getting advice for my mother, who has ALS. But I'd like to know if I should seek yet another opinion and get another EMG for myself. Also, I'd like to know what peoples' experience has been with quick, brief EMGs.
My mother has ALS...
I was on here about 6 months ago when my fasciculations started. I had no other real symptoms of anything, yet had an EMG/NCV and all was good. Was told BFS and to move forward, however, the neurologist did say I should have a follow up EMG in 6 months.
Fast forward now and for the past month...
I know that the FDA will be deciding what to do about Endaravone in June 2017 here in the US, but I'm wondering, do any of you know how I could research where we could potentially go in Japan to have access to Endaravone sooner than that? I imagine that even if the FDA approves, the...
I have PVA as my rep and they also want a DBQ to file claim even though my VA medical records under active problems they have ALS and the VA Doctors from Nuerology and Pulminary refused to sign one. I have been to a Neuro outside VA and they even refused as well as just agreed with VA. My...
Since my dx I've been to three ALS Specialty Clinics. One was strictly for a second opinion and it was out of state.
Two weeks ago the doctor I ended up with (since my diagnosis) told me that the level of pain I was experiencing did NOT happen in ALS and said "pain other than cramping...
motor neuron disease
pulmonary function test
Sorry I haven't been on in quite a while, I had so much happen to me at the end of last year that depression has really taken a major grip on me and I'm trying my best to fight it...but it's winning.
I was referred to Vanderbilt University to start attending the ALS Clinics there and today was...
I was diagnosed 3 weeks ago with als but neurologist is unsure of type. I have aiready lost use of my left hand and have weakness in right. I have an appt at MUSC in Charleston SC in Nov and wondering if anyone has had any experience at that facility. I am a veteran and could probably go to the...
Posted to “Do I have ALS? Is this ALS?” forum on 8-5-2016 under “Neurologist Says…..”, I posted a diagnosis from Mayo Clinic as
Diagnosis: Motor neuron disease, unspecified
Diagnosis: Other specified disorders of muscle
Diagnosis: Disease of spinal cord, unspecified
Update: The Neurologist...
is this als
motor neuron disease
Special thanks to Tillie for all her knowledge and formatting skills.
I've already had interest from doctors, clinics, and other health care providers. They want copies.
Here's the latest. Thank you to all on the forum who contributed. The hardest part was the personal interviews. I'm...
Hi people, I was wondering if I could get some advice as I am in a bit of a state since the neurologist I saw lately thinks this could be MND/ ALS, but from my reading around the internet and even reading your stickies it really doesn't add up fully, and I've been left in a bit of ... a mess I...