clinics

  1. A

    FALS -- changing symptoms?

    I hate to post here. My focus in this forum has been on getting advice for my mother, who has ALS. But I'd like to know if I should seek yet another opinion and get another EMG for myself. Also, I'd like to know what peoples' experience has been with quick, brief EMGs. My mother has ALS...
  2. M

    Concerned and need some more feedback

    I was on here about 6 months ago when my fasciculations started. I had no other real symptoms of anything, yet had an EMG/NCV and all was good. Was told BFS and to move forward, however, the neurologist did say I should have a follow up EMG in 6 months. Fast forward now and for the past month...
  3. S

    Edaravone

    Hi All, I know that the FDA will be deciding what to do about Endaravone in June 2017 here in the US, but I'm wondering, do any of you know how I could research where we could potentially go in Japan to have access to Endaravone sooner than that? I imagine that even if the FDA approves, the...
  4. A

    (DBQ) Disability Benifits Questionare

    I have PVA as my rep and they also want a DBQ to file claim even though my VA medical records under active problems they have ALS and the VA Doctors from Nuerology and Pulminary refused to sign one. I have been to a Neuro outside VA and they even refused as well as just agreed with VA. My...
  5. KimT

    ALS Specialist denies pain related to disease

    Hello, Since my dx I've been to three ALS Specialty Clinics. One was strictly for a second opinion and it was out of state. Two weeks ago the doctor I ended up with (since my diagnosis) told me that the level of pain I was experiencing did NOT happen in ALS and said "pain other than cramping...
  6. K

    Bladder issues

    Sorry I haven't been on in quite a while, I had so much happen to me at the end of last year that depression has really taken a major grip on me and I'm trying my best to fight it...but it's winning. I was referred to Vanderbilt University to start attending the ALS Clinics there and today was...
  7. D

    als clinics

    I was diagnosed 3 weeks ago with als but neurologist is unsure of type. I have aiready lost use of my left hand and have weakness in right. I have an appt at MUSC in Charleston SC in Nov and wondering if anyone has had any experience at that facility. I am a veteran and could probably go to the...
  8. A

    Update to Neurologist Says.....

    Posted to “Do I have ALS? Is this ALS?” forum on 8-5-2016 under “Neurologist Says…..”, I posted a diagnosis from Mayo Clinic as Diagnosis: Motor neuron disease, unspecified Diagnosis: Other specified disorders of muscle Diagnosis: Disease of spinal cord, unspecified Update: The Neurologist...
  9. KimT

    The ALS Awareness Project

    Special thanks to Tillie for all her knowledge and formatting skills. I've already had interest from doctors, clinics, and other health care providers. They want copies. Here's the latest. Thank you to all on the forum who contributed. The hardest part was the personal interviews. I'm...
  10. D

    25 years old and Neuro thinks MND but unsure...

    Hi people, I was wondering if I could get some advice as I am in a bit of a state since the neurologist I saw lately thinks this could be MND/ ALS, but from my reading around the internet and even reading your stickies it really doesn't add up fully, and I've been left in a bit of ... a mess I...
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