clinical trial

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    Stem Cell trial (Nurown)

    BrainStorm Cell Therapeutics - October 6, 2014 "The completion of patients follow-up in this second clinical trial of NurOwn™ is an important milestone in its clinical development,” stated Dr. Yael Gothelf, PhD, Vice President of Scientific and Regulatory Affairs for BrainStorm. “We are very...
  2. N

    Mexilitene

    Anyone see this or try it? Apparently Mass general thinks this is one of the more promising candidates. Mexiletine - channeling ALS? Posted by author Michelle Pflumm, Ph.D. clock February 5, 2013 cortical hyperexcitability sodium channel ALS MND Calming ALS nerves Mexiletine may help...
  3. N

    Clinical trials

    Looks like to get into clinical trials in Houston one needs to be seen by one of the neurologists at the ALS clinic there. Appel is a 3-4 month wait, I dont know about Dr. Simpson. Probably need to be seen at any center that is having trials.
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    Genervon / GM604

    Odd that we've not mentioned this since a year ago. It appears That Genervon was quite pleased with the recent Phase 2a results, and the 'orphan drug' classification is, hopefully, hopeful! ;) PRESS RELEASE June 30, 2014, 6:01 a.m. EDT Genervon Announces Biomarker Data from GALS-001 Clinical...
  5. D

    Positive personal L-serine results

    Hello Folks: I wanted to post in the other L-serine post but it was closed so I had to start a new thread. The maximum dosage being used in the trial is 30 grams daily. I was told by someone that was in the clinical trial, but dropped out as her Husband continued to decline. The found out...
  6. M

    Gilenya versus Rasagiline

    Greetings: I need your opinions and input if possible. I have the opportunity to participate in a phase 2 clinical trial in either Gilenya or Rasagiline, and I don't know which one to give the edge to. My neurologist has given the thumbs-up to both. Any suggestions? Thanks very much.
  7. S

    tirasemtiv

    Looking for others involved in cytokinetics clinical trial for tirasemtiv to compare notes. I am a 58 yr. male living in Durango, CO. and traveling to Phoenix. (fly/drive alternating weeks) Getting tough. I've had ALS for about 15 months. The decline seemed to stall for a few weeks when I...
  8. K

    Getting Into Non Local Clinical Trials

    Immediately upon being diagnosed I signed up for multiple clinical trials. Three rejected me because I was not close enough to their clinic, I met all of the inclusion criteria and failed none of the exclusion criteria. I understand that there are limited slots available and the clinics want...
  9. M

    Sorry to meet you!

    I never really had a dad, I mean he was there physically but thats about it! About three years ago my mom met a man, a man who is now a very important person in mine and my kids' lives. He is the kindest most caring man that I have ever had in my life! I love him as if he were my dad...
  10. Nikki J

    Thank you David

    For starting this subforum! I am not sure how many of us there are here now. For those who don't know me I am Nikki. My family is a FALS family and we are c9orf72 which is the most common cause of FALS. C9 causes ALS and FTD either alone or together. It also causes progressive supranuclear...
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