clinical trial

Darlene Long 10 hrs Most of us can remember the euphoria we felt when we passed our driving test and suddenly, the world's door was opened. Freedom. Hello World, here I come! Maybe all those teenage hormones flowing heighten those feelings of freedom, but being able to get yourself from point A...

From the NEALS site: "Ultra-high dose methylcobalamin (E0302) prolongs survival of ALS: Report of 7 years’ randomised double-blind, phase 3 clinical trial ". I won't post the whole story but you might want to read the article on the site. Not sure if our docs would give us twice weekly...

Does anyone know if doctors will prescribe this? Has anyone here tried this? I found some old threads, but they are several years old. CONCLUSION: The present study demonstrated for the first time that ultra-high dose methylcobalamin can significantly prolong survival and retard progression in...

I can't help but feeling guilty - massively so. We were so late in finding the diagnosis - even after 3 neurologist. It progressed so fast and I was blinded to anything serious. As it progressed quickly I was foiled at every turn: Took time to get certain meds, time to get a peg tube, time to...

There is a webinar scheduled for today at 4PM eastern time on the Diaphragm Pacing System To register go here: https://attendee.gotowebinar.com/register/5494824017281538818 "Dr. Jeremy Shefner (Barrow Neurological Institute) and Dr. Jonathan Katz (California Pacific Medical Center) will...

Hi everyone, Long time reader, first time poster. I am grateful for all the fantastic information I have learned here along my meandering journey. I got a probable ALS diagnosis in May at the age of 33 and another EMG in August confirming my probable status. I went from full-time to 30 hrs/wk...

I'm not sure about it and would like to know what you all think about it. Here it is... December 16, 2014 Dear ALS Fighters and Families: There is an opportunity for us to expand WFND’S current therapy program for PALS (People with ALS) and to totally stop ALS progression. Although...

I tagged this onto my original thread, but seems to have gone unnoticed. ----------- This was forwarded to me by a third person as part of a clinic visit last week: "Cedars-Sinai is in the process of signing up qualified ALS patients for a clinical trial of a device called a "Pulmonary...

Hi all. I'm trying to found out when/if DPS is a viable option and if it's available to anyone. Is it still in clinical trial? TIA!

My initial visit to Beverly Hills Cedar-Sinai hospital to be screened for the DPS clinical trial was today. Wifey had already left for her new ceramics class at zero dark thirty, so I was on my own. Greybeard the Pirate Parrot picked this morning to take vengeance on me. He's bonded to...