clinical trial

Do you have frequent muscle cramps? Have you been diagnosed with a motor neuron disease like Amyotrophic Lateral Sclerosis (ALS), Primary Lateral Sclerosis (PLS), or Progressive Muscular Atrophy (PMA)? If you’ve been diagnosed with motor neuron disease and meet the requirements listed below, you...

RCH4 revisited again I have been on the ALS drug RCH4 for the past 19 months and I am upset about the moderators comments which are most unfair to a charity who has provided both support and RCH4 free of charge worldwide for years. The moderator here, Laurie, has locked two previous threads...

Hey everyone, I've done a tremendous amount of reading on this forum. I'm fairly confident my symptoms DON'T line up with ALS, but was looking for some reassurance as my neurology appointment is a few months. I will provide all information in point form with some words capitalized as I think...

I started work on a project proposal. Still in a very initial phase. Contributions welcome. No login needed for editing. Link..

Hi! I was newly diagnosed in March 2017, but problems started around Aug or Sept 2016. So I'm less than 1 year in and doing ok for now, but yes, I'm declining. Anyway, I was hopeful to go to my 2nd ALS clinic visit because I thought I could get Radicava. My clinic date was 8/4. My doctor said...

I'll do anything to get out of the house these days. When my wife got a jury duty notice, I thought, "Hey! That sounds fun!". She wasn't scheduled until June and she was just supposed to call in to see if she had to report. I called the jury office and asked if my wife could report in person...

The clinical research coordinator at UCI MDA-ALS & Neuromuscular Center emailed my wife and said: "I wanted to let you know that all the results are in and you qualify for the NP001 ALS trial! We are very excited to have you participate and sincerely appreciate your effort!! As I mentioned...

I finished the Tirasemtiv Clinical Trial. Two weeks open label, to test reactions. 48 weeks double-blind trial. An extra two weeks due to scheduling. My breathing numbers have not dropped for the past 24 weeks, and my leg and arm strength improved over the past 18 weeks (slightly). My small...

Hi All, My fiancé is thinking about starting Riluzole, however, we are wondering, if he starts taking it, could it potentially disqualify him from being able to participate in any clinical trials? Also, does anyone know if one would still be able to receive the Edaravone treatment if they...

Hi Everyone, It's been awhile since I've last posted. I've been muddling through what I now know to be the "7 stages of grief". I see a therapist weekly and am on anti-depressants. While not a "cure all" it has definitely helped. My PALS is doing good on his Tirasemtiv clinical trial. I've...