christmas

  1. L

    ALS and iPads for communication?

    My father was diagnosed about 9 months ago, limb onset. He has extremely limited use of his arms now and within a few months will have no use, the doctor is predicting. My brothers and I are thinking about getting him an iPad mini for Christmas, as it's something he's wanted for awhile. I...
  2. C

    Possible Bulbar Onset?

    Is there any chance this is ALS? Last Christmas, i had an episode of not being able to get words out/slurred speech. it lasted about 30 seconds and went away. 8 months later I had an episode of blind spots in my vision and nausea along with speech that was slurred when I would say certain words...
  3. skipper66

    Christmas !

    Hi Everyone, Christmas will be here before you know it. I was wondering if anyone had any unique ideas for gifts for your PALS or for anyone on your gift list. Any fun traditions that you do with your family? Any suggestions appreciated.
  4. T

    Such a short time, such a long road.

    It's hard to believe that since we first heard the words "possible ALS" on April 22 that my dad would be where he is today. What was some twitches in his biceps is now full blown. He barely can use his left arm and his right is going quickly, he walks well but slower paced and with a hint of...
  5. V

    would love to give my wife a child

    My wife and i have been trying for a baby for some time now.She has lost a chunk of weight, b.m.i.was 38 now 35, since christmas and we can now get fertility help, However things may still be difficult as if after six months of hormone pills we may need i.v.f. then she's been told to lose a lot...
  6. Txgirl

    Your mother is always with you...

    I want to share this poem. I printed it and gave it to my son today. He gave me a big hug and said "I love you mom." I hope you all like it as much as I do. “Your mother is always with you. She’s the whisper of the leaves as you walk down the street. She’s the smell of certain foods you...
  7. K

    Residential Care for ALS patient? When?!

    Friends: I am new to this forum, so will jump in with my pressing question: what experience have any of you had with having to make a hard decision to seek residential care for an ALS patient? Background: my wife was diagnosed at Christmas, 2012, and the disease has come on very fast and...
  8. L

    Too fast for PLS?

    Last October I was hiking on 3-5 mile trails. By the end of November, something was wrong with my left leg. I seemed to be loosing strength. By Christmas I was limping considerably and my leg was very stiff most of the time, especially when it was cold outside. My lack of balance and limping got...
  9. L

    Mom with Bulbar Onset of ALS

    Hi, I just joined the forums today as it's been an overwhelming week. My Mom was diagnosed w/Bulbar onset ALS just before Christmas. We've had our 3rd appt. at the Hospital for Special Care in New Britain, CT with an awesome doctor and team. We are all just astounded at the quick deterioration...
  10. U

    Time for a quick update...

    I have now had 2 visits with a neurologist and referred to the motor neuron specialist I have tried to see for a couple of years so things are moving along. I totally weaned off of the methadone and many problems seemed to have lessened. I went from a wheelchair to walking 1-3 miles a day. Spent...
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