christmas

  1. S

    Symptoms I have observed

    Hi, I have read the stickies regarding ALS and I admire the commitment of everyone who takes the time to answer all the questions. I am 63 years old male having retired from work last March and my general health is good, I have haemochromatosis (iron overload) which is well managed by my...
  2. Kristina1

    update on me

    I haven't posted in a while so I wanted to update. One of the main reasons I haven't been on here is... I'm writing a book! Or trying to. It has nothing to do with ALS or anything autobiographical. It's a scifi/fantasy romance. I've long been an avid fantasy reader, and always had stories of...
  3. C

    Tongue Quiver

    Good afternoon, My name is Chris and I am a 29 year old male. For the last 4 months the sides of my tongue have quivered non-stop. The best way to describe it is as if the sides of my tongue move left and right at an incredibly rapid pace while the middle maintains it's placement. I can not...
  4. R

    Sharing the road

    My Pals started a downward spiral 30 days ago. Could no longer talk, appetite diminished, slept 14-15 hours at night and often a long nap in the afternoon. I asked twice if she wanted our granddaughters to come decorate for Christmas and never got a response. I had them cone out anyway and she...
  5. N

    I feel like i lost connection with my own body

    Marry Christmas Everyone! Sorry for the long post and bad English. To know my story you have to know a bit of my background. I was born in the Congo and lived there until age 7. I just turned 30 and things haven't been going to well personally to be honest. As you may or may not know, Congo...
  6. B

    Merry Christmas

    Our Savior is born anew every Christmas. May He be born anew in your heart . May you be enfolded in joy, peace and love. May blessings abound. B
  7. Nikki J

    Merry Christmas

    To all our members and guests! Wishing joy and peace to all May 2019 be a year of blessings and hope!
  8. S

    Update - 12/24/18 - Extreme bulbar worries

    Hello everyone...I hope everyone is having a good Christmas season. I wish I could say the same. It's been almost 6 months since I have been here. Some things have gotten better and some a lot worse/terrifying. I was hoping to never have to come back here but my situation has dictated I do...
  9. BK2011

    Merry Christmas

    To all PALS & CALS, Leaving for my daughters shortly and won’t be online much for a couple days. Wish all of you a very Merry Christmas and a Happy New Year. God Bless you all. PALS - Enjoy what you can and don’t sweat what you can’t control. I’m going to enjoy watching my grandkids open...
  10. E

    Doing chores

    Hello, and Merry Christmas! I am writing to ask you a question about the daily chores. My father has retired about a year ago and has been suffering from PLS for 3 years. Since then, he spends most mornings doing chores: aside from showering himself and getting dressed, he cooks for the family...
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