To date most of my respiratory issues have been solved through the agency of a party hire shop. True! My $3000 breathing machine is supplied and serviced by the same cheery gentleman who, on the other side of a brick wall, flogs funny masks, paper streamers, party favours and helium balloons...
The invitation was like a spark to a tinder box. For me it was confronting. For those of my family who happened to be at home when the invitation arrived it was the perfect opportunity to tackle me, once again, on a favourite topic. The invitation was from our good friends, to go with them to...
For all who are not aware, there is a segment of this forum seen only from "ALS/MND Support Group Forums" menu...The Main Page. This is called "Off Topic", and has subgroups. There is "Other", which includes social chitchat, stories and other fun stuff, along with the Christian Support thread...
For all who are not aware, there is a segment of this forum seen only from "ALS/MND Support Group Forums" menu...The Main Page. This is called "Off Topic", and has subgroups. There is "Other", which includes social chitchat, stories and other fun stuff, along with the Christian Support thread...
I hope nobody minds... below are somewhat random jumbled thoughts....
My wife was officially diagnosed with ALS about 3 weeks ago... though she's asking for a second opinion. We first learned about ALS about 2 years ago when she went into the dr about her leg. It was smaller than her left and...
A conversation with my Neurologist this week took an unwelcome turn.
“Any depression?”
No.
“That surprises me.”
I couldn’t keep my game face as I described the increasing joy I find in life; the companionship of many friends; the wonderful, robust lives of my children. But he wasn’t buying...
age
back
chair
children
christian
conversation
depression
diagnosis
eyes
fear
life
mnd
mobility
modifications
neurologist
pls
power
power chair
speech
stress
symptom
travel
treatment
voice
wrong
Hi everyone,
I'm so glad I found this place! I am completely and totally lost. At first I thought we'd just take it one day at a time, then my 47 year old mom tried to say Abercrombie and Fitch and I wanted to go hide somewhere and cry! I'm in constant turmoil. I'm a Christian, and I...
I wondered if posting links both to blogs or to helpful items is now not allowed? I just looked and saw many links removed from posts in the "Tips, Tricks, and Gadgets" section; things I use, found helpful and wanted to share.
Links I tried to add yesterday and today from blogs to the...
“It takes me about an hour and a half to wake Adam up, give him his medication, carry him into his bath, wash him, shave him, clean his teeth, dress him, walk him to the kitchen, give him his breakfast, put him in his wheelchair, and bring him to the place where he spends most of the day with...
This is a story of hope. The last two months have been tough, but I have huge family support. I offered to host Thanksgiving for us, my sister's family, and our new neighbors since we love to trade holidays and this one I felt I could manage more than Christmas. (My sister, who is also my...