china

Hi everyone, My mom was diagnosed with ALS on Dec, 2015. on Feb 2, 2016, she fainted & doc's later told us that she now has type 2 respiratory failure. We was not prepared for such quick progression of the illness. She has been operated & now has a tracheostomy tube inside her trachea, with...

Dear everyone The patient is my monther, we are all in China. Patient feels weak on her right leg, so that she is unable to walk normally, and the condition is gradually deteriorating. She feels her right arm is also weak in recently, sometime she feels difficult to hold the...

It seams like stem cell treatment is the hot topic now. In the US the FDA is wanting to regulate it, so where do you go? Bone Marrow stem cell treatment sounds interesting, but is there anywhere reputable in the US doing it outside clinical trials? It is difficult to get into the clinical...

I went to friends funeral for a family member of his. I stumbled and knocked over a picture on a table... I stood the picture back up, backing up away from the table I side stumbled and nearly knocked over a display. All this with cane in hand. This guy near me said, "You're like a bull in a...

My mother's name is Joy, and she certainly lived up to her name sake. It is with great sadness to share my mother has passed this morning peacefully at 6am (ET) from her battle with ALS (bulbar). My mother was an amazing woman. She became a school teacher and taught at Douglas MacArthur High...

brainstorm's mesychamel stem cell drug trial is finished and the results will be announced on January 5th. sounds like the results are very very very good. progression slowed/stopped with several patients and several patients got better in a lot of areas. the fda will get the results that...

My PALS, DX'd a year ago is now unable to use hands, or arms and is in a powerchair nearly full-time. So I do his meds, shower, dress, toilet (thank you bidet!) and feed him. His sister, a most loving generous woman is staying nearby in her RV to provide help but I still have difficulty with...

Hi all, I just wanted to gauge your opinions. I had hoped to have put all this to bed. As many of the key, helpful members on this forum know, at the beginning of September, and for a good month and a half, I had twitching/ buzzing constantly in my left calf, as well as some, moving but...

Hello Everyone, I posted in the Intro section, but Nikki suggested I post here in that not everyone reads the introduction section:) I had also previously posted in the is this als? section as the neuromuscular team tried to piece together what was going on with me. Today after being in the...

Hi Everyone, I posted earlier to the is it ALS? board when I was getting my diagnosis sorted out. My name is Jen and I am 39 and I am married with an 8 year old daughter adopted from China. I just got out of the hospital for a second neurology stay due to swallowing difficulties. Luckily, both...