1. K

    Is this ALS?15 years old

    Hello everyone, I am sorry to bother you. I am from China and my English is not good. I am 15 years old and no one in my family has a nervous system disease. I learned about amyotrophic lateral sclerosis a month ago. Soon I felt that my right arm was weak and my left arm was weak. I went to...
  2. T

    Question about atrophy (with photos)

    Hello everyone, I have a previous thread here: I do not want to waste anyone's time, and am thankful to Laurie for her valuable insight already. I am posting because I am would really appreciate anyone's input on...
  3. T

    Deeply Concerned

    I want to keep this thread short as possible- tough to do since my story is long. I have read all stickies and have in fact been lurking on forum for months. I know everyone here my name as creepy as it sounds. I have never felt so deeply empathetic toward a group of people as I now do toward...
  4. J

    Feasibility study for new drug

    let's say there are 5 [email protected] statistic data say less ([email protected]), but there are many poor, old, sick from other diseases etc. it means that there are on earth max 500000 pals (according to official data 100-200000). 90% cannot afford themselves drug which is permanent and cost (lets...
  5. L

    Outer Space Jokes

    Q: What is a spaceman's favorite chocolate? A: A marsbar! Q: Why did the sun go to school? A: To get brighter! Q: How do you know when the moon has enough to eat? A: When it's full. Q: What kind of music do planets sing? A: Neptunes! Q: What's a light-year? A: The same as a regular...
  6. J

    Entering 4th year of ALS - my status, pleace advice

    in a 750000 citizens capital of my country, i found just one guy (early twenties) who has ALS. he was in china, hardly speaking and moving etc so i dont have base to compare with him. there are at least more than 15 people having ALS in my town, but for sure they dont use internet. as i said...
  7. N

    Help interpreting EMG/NCV results?

    Hello, I posted on here about 8 months ago...please see the link below. To summarize, I got an EMG/NCV done when I was living abroad in China and I never really got a good understanding of what these results meant (abnormal). I know that no one here is a doctor, but any feedback on these...
  8. R

    TCM Hospital in china

    I have recently contacted TCM hospital in china who provide a herbal tea for ALS treatment. Have anybody tried it before, kindly share your feedback. It will be helpful if anyone can share other helpful info for ALS treatment. Disease started 4 months back in my left arm and now I could not...
  9. S

    ALS treatment and scams

    Israel completed a legitimate study where the protocol was used in three parallel studies in the US at Mayo clinic, Emory and Mass General. Research into China is nothing but a scam. No studies to evaluate. Be real careful. There is no cure yet and stem cell therapy for ALS is til in its...
  10. Lilacs53

    A interview

    Good morning everyone :) I did a 45 minute phone interview this last Wednesday on ALS. I will be getting paid a $100 for it, but would have done it for nothing. The young man that interviewed me was very professional but yet compassionate. All I had to do was tell my story about how ALS has...
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