children

Well, hard to believe it is almost 5 months since my sweet husband died. I still hate ALS just as much. don't really think about it too much though...don't really want to. I hate to look at pictures of him from the last few months of his life. I can't believe that I didn't see (at the time)...

Hi, I'm here like most, in wanting to know your thoughts on symptoms I'm experiencing. There are a number of things so it may be easier to put it in a list/time line: Early December; I start getting twitches in both of my calves. It was a constant twitching, like a rumbling or several...

Greetings. Since I’ve benefitted from reading through these forums for some time now I thought I should introduce myself and try to make some contributions of my own over time. I’m a retired academic librarian and 69 year old husband (our 47th wedding anniversary is next week) and was diagnosed...

i just found out my son has ALS hes married with one child... as a mother i am devastated, i am suppose to protect my children, they are not suppose to die before me, its not about me its about him. they say the kind he has is very aggressive and he has maybe 2 to 5 years . i can not imagine my...

We have two children, aged 16 and 13. How do we tell them their parent has been diagnosed with ALS?

Hello friends in common! My husband has Bulbar onset ALS diagnosed 4/2013. Has a DPS and feeding tube. Eats through tube, can still talk some, can walk to the bathroom (with leg braces) with walker otherwise needs the power chair. Is all there mentally and a very intelligent man. His...

Hi everyone, My name is Henk Vrielink, I live in Nijmegen in the Netherlands. My first visit to a neurologist was in aug.2010 bút it took until april 2014 to get the diagnose ALS. I have only problems with arms and legs, I use a wheelchair permanentely now. I am 66, married, 3 children and 6...

The Christmas season (and Santa) provides us with a gentle reminder to think of others ... secure in the knowledge that others are thinking of us. Hoping that my fellow PALS and their caregivers get some joy from the season and wishing you all strength and comfort in the New Year. Dear Santa...

Night Before Christmas in Australia 'Twas the night before Christmas; there wasn't a sound. Not a possum was stirring; no-one was around. We'd left on the table some tucker and beer, ...Hoping that Santa Claus soon would be here; We children were snuggled up safe in our beds, While dreams of...

I have been using a wheelchair for 9 months and think I have learned enough to make it worthwhile sharing a few things. For background, I now have 3 wheelchairs. Primary chair is a Permobil C500s VS (I have over 650 miles on it now) Backup chair is a Permobil C500 Corpus 3G (I have only put...