children

  1. N

    Single mom & scared.

    Hello, I’m new here and have read the stickies and quite a few other posts…unfortunately. My “symptoms” started about 2 months ago when I made the mistake of taking to the internet for my muscle twitching. It was body wide (and still is) then I began to notice some tightness in my left shoulder...
  2. V

    ALS or not, need your advices

    Hi Every body, First of all, please apologize for my mistakes because I am french. I am 34 years old, married with two children and live in South of France, looking for some feedbacks about my situation. I am in a really difficult time since about 7 weeks, where I am dealing with big problems...
  3. D

    6 months later, I'm angry

    I cried a little the day he was DX'd and last week at Arlington National Cemetery as he was so beautifully interned. That's it but I'm surprised at the anger I feel over little and big things. I'd been mostly numb, doing paperwork only enough to deal with "must dos" but mostly just trying to...
  4. J

    Just beginning our ALS journey

    Hi, my brother was officially diagnosed with ALS on December 29, 2015. It rocked our world. He is 45 years old, a single dad with two young children. He will begin the ALS clinic the first week of April. I personally look forward to that as any direction and guidance is greatly appreciated. This...
  5. L

    If it weren't for bad karma...

    After a terrifying incident where my Dad woke up in a pool of blood, and proceeded to bleed all over his bathroom and bedroom, Dad was admitted to the hospital. He has been diagnosed with Stage 4 metastatic castration-resistant prostate cancer. He has a tumor growing from the prostate to the...
  6. H

    Paralyzed left body

    Hello everyone, This case is very new to our family, and never happened to anyone before in the family. It's about my brother son age 13 years old. Current Situation: He is paralyzed suddenly on left side of his body, he can't move his left arm or left leg, he can't speak because I THINK the...
  7. C

    What can we do?

    Hi all...this is my first post here. My beloved brother in law...my husbands oldest brother, has recently been diagnosed with bulbar onset ALS. He's been told that he probably had 6 months to a year to live. He is a silver star decorated vet of the Vietnam war (as a medic) and is simply the...
  8. L

    Familial ALS

    Hello. I posted here sometime last year and unfortunately I'm back again. I'm copying my original post here so I don't have to retyoe it to give the background. The change since last year is that now we have another family member who has been diagnosed at age 63 with ALS. She is my grandmothers...
  9. F

    Viaticals?

    Good morning all. This is my first post. Thank you in advance for any help you all can give me. I feel like this site is the only place I can get some true help without strings attached. My very active, healthy mother was diagnosed with ALS in June of 2015. She is now in a nursing home (in SC)...
  10. B

    Recessive Genes?

    I was wondering if there are any recessive genes that are linked of ALS? My mother recently was diagnosed at 61 and her aunt also was diagnosed at 78. However, she has 30+ cousins on that side of the family that are all 50+ and her aunt was one of nine children. No other family members have...
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