cell

No "new" news to report from the doctors but wanted to ask about worsening fasciculations. My bilateral arm weakness started in March of this year and the fasciculations started in April. They were sporadic at first but body wide now for over a month. It's a constant thing especially in my left...

My dad was diagnosed in February with ALS, it has gone quite fast. He is already bedbound with no movement but in his right arm. I was wondering if anyone had in tricks or gadgets that I could buy to help him change the channel on the remote, also what about with using a cell phone. I know this...

I have had 3 EMGs at approx. two-month intervals. First two were completely normal. Third shows chronic neurogenic changes in the form of a few large MUPs in left arm and right leg. Clinical exam still normal except for brisk knee reflexes. Neuro thinks radiculopathy because no active...

Hi Guys (and Gals): I started lurking here about 4 months ago and have read hundreds of posts. I will put it out there that I have seen two GPs and both have said I have a neurological disorder. My HMO is slower than I am, and I did intense blood work this week. Still, I wish to insult nobody...

Engineered stem cell advance points toward treatment for ALS (May 28, 2013)

Since Nov.2011, my husband have had ten mysterious attacks that initially occurred approximately every two months. The last four months, the frequency has increased to about every five weeks. He's been hospitalized for four day stays on four of the occasions. He can't endure the ride on the...

I have a PRC Eco2 and the EcoPoint unit. This was left to my by a good friend who was suffering from ALS (Lou Gherigs disease) he left us this past February and wanted me to sell this to someone who needs it. I would really like to donate this device but the reason he left it with me was to...

First, thank you in advance for your support and replies in what has been a very stressful & concerning time for me. A brief background of my situation, I am a 40 y/o dad of 2 beautiful little girls. Started expiriencing the following about 2-3 months. Physical activities running, gym...

Hi all, My dad has been diagnosed with ALS three years ago. He is now in a wheelchair; We have heard about the cell stem treatment in Hadassah and Switzerland. It represents a big hope for our family and I am sure for everyone who has ALS. There is very few information and feedback from...

A question about the next neurology appointment I essentially have three options 1) NCS/EMG at my current hospital through my Neuromuscular specialist 2) NCS/EMG with consult with the first Neurologist to give me an NCS and Sympathetic Skin Response test 3) Do nothing My recent appointment...