celiac

  1. L

    Understanding the EMG

    Hello, I am new to the forum because I am a little worried because things have not been properly explained to me and because of that, I still have fears. I am a 27 year old male and my story begins this past September: In about mid-September, I began to notice soreness in BOTH of my calves...
  2. J

    Gluten, Glutamate free diet

    Since it looked like I might have some MND in August I went gluten and glutamate free. While my EMG is consistent with ALS according to my neurologist I have no muscle weakness. My symptoms have improved over the past three months, going up and down- sometimes no fasciculations/twitches/cramping...
  3. C

    Where is the ONE website....

    ....for PALS, Type 1 Diabetes, Celiac Disease, and Colitis? I know it doesn't exist. I'm just trying to lighten up on this Christmas Eve. Tell me something funny! What more could a girl ask for?
  4. allie/chase dad

    introduction

    Hello everyone. First off I want to thank all the kind and knowledgable folks on here for their time and compassion. Reading this forum has been both informative and inspirational. In no way do I want to disrespect or waste the time of the many people battling (PALS and CALS) this difficult...
  5. P

    Should I be worried?

    Well I tend to spend my time over on the BFS boards but I guess I can't get this ALS fear to go away completely. I know how annoying it must be to answer these questions over and over and I appreciate anyone who takes the time to respond to me here. I am Male and just turned 28 years old...
  6. 6

    31years old with 2 kids, and possible ALS?

    Hello- anyone who has any advice would be greatly appreciated, and I appreciate your time in advance! I'm currently getting worked up for my symptoms and I have a few dr's concerned that I may have ALS. I go to the ALS clinic in January for a consult, in the meantime I've been seeing a few...
  7. T

    Question about symptoms, can someone help?

    I am having a pretty difficult time. I am currently fixated on the fact that sometimes when I eat, I feel a crumb or small piece of food after swallowing that feels like its stuck to the side of my throat. Not enough to choke, but noticable. I can easily wash it down with a drink of water...
  8. A

    Signs appear consistent with juvenile ALS, but very strange sensory symptoms as well?

    Hello, I'm Alastor, 18 and new here. :) I think I should just let you guys know beforehand: I am not the average Google monkey who is a hypochondriac and is also terrified of various occult illnesses due to nonspecific symptoms(i.e, fascics all over body, no weakness, twitching), although I do...
  9. C

    1st IVIG treatment

    This site and subject is all so new to me. I'm active on other forums (celiac disease and diabetes). Now, after just under 2 years, I've been diagnosed with CIPD. I had my first ivig treatment October 26th - 29th 3 hours a day. I'm not sure if it's my imagination, but could it make my...
  10. S

    Another ALS Imitator

    Just an FYI: Still trying to pinpoint what may be wrong with me (as I'm having another hard day with fascis, my head feeling like a 50 lb. bowling ball, etc. and can't seem to accept BFS as the answer) and found this on Medscape. Thought it would be of benefit to the Forum: Synopsis: "A...
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