celiac

  1. S

    Still have concerns

    Hi, I apologize for being back but the drs. can’t get to the root of my issues and keep telling me to go back to the neurologist. The Neuros keep saying come back in 6 months. My last visit drs thought I had celiac but now it turns out that was not the issue. Couple of questions if you don’t...
  2. S

    Update-hopefully to help others

    Hi, I am just posting to help others with the same anxiety I’ve gone through this year. I posted before with flaccid in a week and lmn sign. I’ve seen many top neuros and they agreed that I had something going on but couldn’t find the answer. I also received great advice from senior members here...
  3. C

    Doctor ordered 2nd EMG after 2 years of symptoms??

    Hi everyone, I have been having fasciculations throughout my body (mostly in my calves and hands) since Jan 2016. I did a EMG in 2016 and the doctor said it was benign fasciculation syndrome. Now to 2018, I was recently diagnosed with Celiac Disease (gluten) and have been experiencing more...
  4. W

    Fasciculations increase with hunger

    Haven't found much related to this but having an issue maybe someone can help with. Was diagnosed about a month and a half ago with ALS. At the time Fasciculations were isolated to my left leg in which I have foot drop. They were absolutely pounding jumps at my knee cap. Maybe an occasional...
  5. W

    Abnormal Celiac & ALS

    So I apologize if this has been covered. I'm in a tizzy. Ive had als symptoms for almost 2 years starting with foot drop. Was told 99% chance of ALS by duke and my father had ALS. Was basically told my last outs possible were copper deficiency and Celiac. Well my Celiac test came back abnormal...
  6. M

    Muscle Fatigue, Twitching and Cramping Following Stomach Illness

    A bit of background as you’ll probably wonder why I’m posting in an ALS forum: 31 year old male. Prior to all this I was an extremely fit, high-level competitive cyclist with few health concerns. At the end of Nov. 2015 I began to have severe gastrointestinal issue (severe cramping, LOUD...
  7. Nuts

    Celiac Disease

    I've hesitated about posting this just yet because I'm not sure that I know what to do with the thoughts and emotions that it's caused me. At our last clinic appt, D r Bedlack told us that because of a recent ALS Untangled review on Celiac Disease, he is now testing everyone for it when they...
  8. S

    26 year old male

    I'm a 26 year old Male. I know the odds are minute, but here are my symptoms, as of a month or so ago. I should preface by saying I have celiac disease. weakness in my hands, my pinkies kind of feel dead in both hands and I find they fold under my ring fingers without my realizing. In turn my...
  9. J

    twitching, tremors, jelly legs, hard to lift arms in morning

    Hello, my name is Justin, I am a 28 year old male and I guess you can say my life altering symptoms first started a few months after my 27th birthday. I have always had really bad exercise intolerance ever since I was in middle school, which back then had seemed to improve the more I did it...
  10. M

    New to ALS Forum

    I'm new to this forum and as you can imagine don't want to be here. I may be one of those Internet type doctors (not a md) who researches and researches then erroneously convinces myself it's ALS. I really hope so. I'm here researching for my wife, who is unaware that her condition may be...
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