Would like to respond to some posts so I thought I better say hello first. I was diagnosed Sept. 2010. First weakness appeared in Dec. 2009. I was conducting a scuba class and couldn't lift my leg to put my fins on and then had trouble getting out of the water. I then noticed troubles riding...
I am going to start the ceftriaxone trial next week. The drug has to be administered intravenously, so they will put a central line coming out of my chest. To keep it clean, the exit site is covered by a stick-on dressing that must be changed once a week.
They had Fran practice the procedures...
Dear all,
I am new in the forum and hope to get some feedback from the ones already in the Ceftriaxone trial.
My mother, 57 years old, currently live in China, diagnosed ALS 1 year ago while the first symptoms onset already almost 3.5 years ago. At first the doctors could not give a correct...
Date: Thursday, September 16th, 2010
Here is an update on the trial from Katie Moisse, PhD:
A clinical trial of ceftriaxone is still enrolling patients at 53 sites in North America, including ones in Ontario, Quebec, Alberta and Halifax. The trial will determine whether ceftriaxone, an...
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I want to say thank you to everyone that answered my previous post and just wanted to give an update.
My brother, Tommy, was diagnosed July 7, 2010. At that time he could walk pretty good using a cane. As of yesterday, 9/15/10, he now has a walker and a wheelchair. His left side is weak.
He...
Can anyone recommend an open-minded neurologist in CT? I've been to 2 that insist I have ALS and aren't willing to consider that I have a pinched cervical nerve causing my arm paralysis. My neck is killing me! I had whiplash 30 years ago and have suffered sporatically ever since.
I've had MRIs...
I was in a car accident 30 years ago and suffered whiplash. I've had pain and difficulty holding my head up periodically ever since. I currently have a dual diagnosed of ALS and Lyme and am on iv ceftriaxone.
Yesterday I tripped and a massive electric shock of pain paralyzed me from the neck...
Well I had my first visit to the ALS clinic at Emory U today. First I will just get out of the way the fact that unfortunately Dr. Glass confirmed my diagnosis. What an exhausting day, appt lasted for 6 hours! That being said what a great team of people. They were so helpful, and informative...