cdc

I just got this today from the ALSA. It seems to me that it is taking a long time to get anywhere. :-( National ALS Registry Timeline (as of February, 2010) October – December 2009 • Launch National ALS Registry website: Now available on the CDC website at CDC - Amyotrophic Lateral...

Just got this e-mail from ALSA. (Why can't the US go in with this with Canada, Aus, NZ and the UK and get a REAL representative database going? Anyway ... this is a good start!) ------------------------------------------------------------------------ A few minutes ago, the House of...

Just received this update from ALSA Advocacy! House Votes to Increase ALS Registry Funding Dear Kay Marie, A few minutes ago, the House of Representatives passed legislation that will appropriate an additional $6 million for the National ALS Registry at the Centers for Disease Control and...

I have copied and pasted the email that I just received from MDA about H1N1. To: MDA Families From: MDA Outreach Date: Oct. 16, 2009 The H1N1 Nasal-Spray Flu Vaccine: What Individuals with Neuromuscular Diseases Need to Know People diagnosed with neuromuscular diseases are among those...

Hi, guys ... apparently there are two national registries ... or am I completely "Lost" again?" The one for vets and the one for everyone in US with ALS? Anyway ... received this notice from ALSA. In order to receive updates from ALSA about the progress of the registry and when we can begin...

I copied and pasted this from my email from ALSA Advocacy! Woo Hoo! Today, October 8, the Centers for Disease Control and Prevention/Agency for Toxic Substances and Disease Registry (CDC/ATSDR) is launching the National ALS Registry website. This is the first phase of building a website...

(Apparently the funding bill went through?) I'm sure others received this e-mail from MDA, but for those who didn't: Government announces plans for national ALS Registry in 2010 The federal government has released preliminary details about the new National ALS Registry, which will be launched...

Has anyone received advice from your doc about the swine flu? The CDC site suggests getting immunized, yet I hear on the radio that a vaccine is not available yet for this strain and will be months away. I also hear conflicting reports on the number of cases and their locations as opposed to...

Hi everybody, I would like to ask you about the statistics. Anybody knows the canches of getting ALS if you are in your 20's. I read here: http://www.amyotrophiclateralsclerosis.org/ that the chances are really low if you are below 38, but anyway, they present this statistics as an example more...

To All: Please find below an email I sent to Coleen Maguire yesterday. The reply she sent me is very informative. For all you Okies, please let this senator know not to keep blocking the ALS National Register. If any of you are interested in the links she refers to, email me off line at...