cdc

I am sure many of you PALS have already done this registration, but the more of us that fill it out, the closer we get to causes, and treatments. I know it takes a while, but it will be worth it to all of us to do so. One day at a time.:smile: CDC - Amyotrophic Lateral Sclerosis (ALS)...

Have a new blog post if anyone is interested. It's extremely difficult as a patient to watch the limited progress made against ALS by the medical community. Almost 150 years since the disease was identified and only one lousy, very expensive medication (Riluzole) that may extend life only 60-90...

For all of you in the state of Georgia or perhaps Alabama or Tennessee or the Carolina's or anywhere else for that matter, please attend the Ga ALS association walk if you can! The CDC will be there and you can register if you have not done so or answer surveys on the registry if you have not...

First Anniversary of National ALS Registry Centers for Disease Control and Prevention ATSDR celebrates the first year of the National ALS Registry. The goal of the registry is to help scientists learn more about ALS. Help us defeat ALS! This article appeared in my FaceBook CDC news feed this...

Let me first apologize. I know that I have not been on the forum over the last 3 months. Not a day has gone by that I have not thought of my "forum family" and have continued to keep all of it's members in my prayers. Many have visited me on FB and asked me how I was and relayed everyone's...

Training Overview Screen

The National ALS Registry is Here! All People with ALS Can Enroll in the Registry TODAY Dear Friend, The ALS Association is thrilled to announce that the National ALS Registry is now fully operational! Every single person with ALS across the country can begin enrolling in the Registry today...

Finally it's here ... https://wwwn.cdc.gov/als/AboutRegistry.aspx I encourage all PALS who are U.S. residents to enroll. In the past, the clues from patients' health histories and environmental exposures were not retained. Imo it has been disrespectful of those who have had ALS that we did...

For your consideration... __________ As We Approach The Mid-term Elections, Please Ask Questions Hundreds of Americans have made the ALS advocacy trip to Washington. Many have met huge accessibility and caregiving challenges to go there to ask for relatively modest federal funding for ALS...

Today's The Day To Ask And Learn This is a good opportunity to learn about the US CDC ALS Registry project and to ask questions.