Is here.
I encourage anyone not in the Registry already to join, though archaic infrastructure has constrained its innovativeness. Data is our best hope of power over this disease.
My husband also participated in the biorepository feasibility study that is mentioned in this report. I would...
So i was going to a great multidisciplinary clinic in Nashville, but we moved to Louisville. I assumed all the clinics on the CDC ALS clinic locator were multidisciplinary, so i asked to be transferred to the MDA clinic in Louisville. But it's just a doctor! Why even call it a clinic if he just...
Logging in to the ALS site requires that your password have:
at least 1 lowercase
at least 1 cap
at least 1 special character or number
Typing is hard enough already
PALS are needed in these two states. I tried to volunteer, but they had enough volunteers in VA.
Very simple to do. They come to your home to take samples. You must be registered with the CDC's ALS registry to participate.
CDC - Amyotrophic Lateral Sclerosis: ALS BioRegistry
Contact...
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Back from neuro
by Bart1 on June 4th, 2008, 4:29 pm
Hi everybody,
Got back from the neurologist. First things first. His words, and the most important ones: this is NO ALS.
(I’m going to try to give as much...
als
anxiety
atrophy
bfs
book
bulbar
cdc
chair
clean emg
clinical
cramping
cramps
cry
early
emg
eye
fasciculations
health
information
life
lift
medical
muscles
neurologist
neurology
pain
professor
running
swallowing
symptoms
twitches
twitching
weakness
work
worries
worry
wrong
young
Has anyone here been invited to participate in the annual meeting this year? Grapevine says that the meeting is next week.
Since Rob Tison has passed away, I'm hoping that someone might be there to bring some questions, thoughts to the table on behalf of all of us who want that project to...
Hi everyone.. I have been reading posts for months and finally have the courage to ask for opinion/advice. Here is my short story..Jan 2102 got pertussis.. turned into indigestion..Hit my nervous system in April 2012.. Chronic Thoracic Back pain left of my spine with headache for months. Had...
advice
als
als?
back
cdc
diagnosis
emg
fatigue
headache
improvement
leg fatigue
love
lyme
meds
pain
reading
shoulder
story
surgery
testing
tests
twitching
weakness
worried
Sharing from a friend with a link to a post on my blog about him Dear Joanne
would you please translate this to English? Its a column to have been underwritten wooden i will send to ILADS guys! borreliasyk I've been in 12 years. Like many others, I have not been believed that the Norwegian...
age
als
blog
cdc
ceftriaxone
clinic
denial
diagnosed
diagnosis
early
friend
health
help!
immune
improvement
life
lyme
lyme disease
money
problem
secure
sensitivity
statistics
story
tests
treatment
treatments
trial
usa
wes
wrong
Please help. Late next month, A friend will be serving as a panelist with the National ALS Registry team with the ATSDR / CDC for the 3rd time, as a PALS representative. He has been asked to give about a 15 minute presentation on PALS’ perception of the Registry and especially to discuss ways...
This is PALS who may be new here.
Please be sure to self-enroll in the U.S. National ALS Registry.
This is extremely important. It is the central registry for ALS cases in the U.S. Physicians do not report cases of ALS to the government the way they do cancers and some other diseases. ALS...