Just keep coming. This is what comes when life is prolonged past the point of any logical reason. We now have a blue stained catheter and drainage bag from some bacteria. Just say no to long-term mechanical ventilation in most instances. DO NOT let a doctor talk you into it. It is a...
Hi everyone, my name is Christill and I'm 26 years old, no family history of als. I had a catheter ablation on my heart January 8th of this year and everything went great, after the operation I literally felt like a new man. About 3 weeks ago I started noticing a vibration that would wake me up...
Hi, my name is Brittany Hyder. I am 14 years old. I have 2 sisters and 1 brother. I have 3 nieces and 3 nephews a long with a niece on the way. I have a mother. Most importantly though, I have a father. Most people would expect me to say had due to he has passed but I do not think of him as...
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OK gang, I've got potty questions. I've read and read, but somehow I guess I missed something. I considered PMing some of you with these questions, but then remembered how the honest, open, nitty gritty information I found on this site brought me back again and again in the beginning.
So...if...
So my pals has developed ascites. Which is basically abdominal swelling due to liver/kidney dysfunction. Hospice says the only treatment for this is diruetics, which would increase his frequency to urinate. His nurse said he would never sleep without a catheter. Any thoughts or suggestions...
Very shortly after my father's ALS diagnosis we toured every nursing home in the area that was available as option to him. He is a veteran, and his options are pretty limited.
WHen my dad was at home he insisted on doing certain things, and at the same time refused to allow us to help him do...
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I have recently had occasionally been having frequent 'instant' urinating. Then will be able to go in time. Muscles don't work there, mostly comes out on the potty chair because of gravity. Totally disabled. Sit up on motorized chair.
Any suggestions? Praying no catheter yet.
This may seem obvious. But, my Mother has bulbar ALS. Until recently she has been able to get up in the night to go to the bathroom. She is getting up 6-7 times a night despite very limited liquid intake through her feeding tube. Recently, she gets up and falls. We have tried putting a bell for...
So Tim had his feeding tube put in 2 years ago as his breathing was deteriorating quickly in spite of the fact that he was still mobile. He had it changed to a low profile Mic Key which was great and just needed to be flushed with water to keep it open. On the odd time that I forgot to give...
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My husband has had this horrible disease for 6 years. He is 57 and I am 50. We have been married 11 years. He is a 25 year Retired Veteran of the Air Force. It came on fast, it took his voice and his walking first...then gradually he has declined to the point of being in a wheelchair 12-14...
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