I hate the thought of going back to long pants for the winter months so I asked a friend to knit me a pair of leggings so I can still wear shorts.
Anything to not have to go to condom catheter and also crouch rot.
With these I can still pwc outside the side of house and go right out the shorts...
Hello, I am new to this forum. I have been reading a lot of the threads and it seems like all of us CALS are dealing with pretty much the same things. I am the main caretaker for my mother, Audrey. My brother and I moved in with her after my father passed away a little over a year ago.
Up...
About two years after receiving his ALS diagnosis, my dad started to experience excessive saliva. He had to clear his throat through coughing because it was difficult for him to spit.
After trying Nuedexta, Amitriptyline, and several other prescription drugs, we found Glycopyrrolate to be by...
Hi All,
As most of you know we have been at this for a very long time. You may have been told that ALS will not affect your bladder/bowels. That may be the case if your PALS goes quickly, but if you choose to vent and they stick around longer than the suggested time frame, you may end up...
Ok. I think Dad is declining. He is barely eating anything. Maybe a few spoon fulls of soup for lunch and about the same for dinner. Has loose bowels now all the time. really short of breath. Hospice brought out oxygen last night. So now on oxygen during the day and his bipap machine at night...
Everything seems to going wrong all at once in the past couple weeks. My mom lost use of both her legs (we are getting a hoyer lift) and we were just starting to nail down a new routine for that.
However yesterday I notice she was unable to pee all day. We took her to the bathroom 3 times per...
I am fully paralyzed, in bed 24 / 7
just got a condom catheter, so i dont drive my wife crazy
for those experienced with these, how did it work out for u? and did it ever cause a Urinary Track Infection?
Thanks,
Pat
My sister and I have been caring for my mom with ALS since November. To give some context, we are 24 and 26. Our dad passed away 5 years ago so it's just us. We have no other family to help.
We had gotten into a good routine but just recently it seems like things have gotten worse. My mom has...
Today I had a major setback as both my legs and trunk stopped working, just like that'.
Also my breathing muscles are almost completely paralyzed, I have a catheter and briefs as I can't get out of bed.
I've decided enough is enough. Early next week I will be checking into the hospice house...