carolina

  1. R

    Chelation for ALS

    Hi, My husband is considering going out of state to a Dr in North Carolina for 6 weeks of Chelation Therapy. Has anyone had this or know anything about it? I am very nervous and don't think this is a good idea. Thanks for your help Rhonda
  2. Sammantha

    Should i move near family?

    I have not been diagnosed but i have progression and will be seeing my neuro on the 25th. We are regular visitors about once a month! Anyways most of you know me i have been around for a year. My question is to the PALS or anyone who wants to give their opinion. I live ten miles from the...
  3. B

    My Sis in Law

    Hello, I need some support. My sis in law wsa diagnosed a little over a year ago. Her doc says she has 3 -6 mos left. Im so upset over this - she lives in S. Carolina and Im in Arizona. Why hasnt this disease been more researched, drugs to treat? Thanks Sandi
  4. W

    Mother's Diagnosis with ALS

    Good Afternoon Everyone, My Mother was diagnosed with CIDP in August 07 after months of doctor visits and hospitalizations. She was suppose to have IVG Treatments once a month to start but because she did not have health insurance, and was turned down for medicade, she started receiving the...
  5. G

    Huge ALS Awareness Event

    Last May when my husband and I attended National Advocacy Days in Washington DC, we were extremely disappointed by the lack of media coverage of this event (coverage was non-existant). Being the "go getter" that he is, plans were started to make the trip to Washington DC this year a memorable...
  6. C

    Support Continues To Build For Als Registry Act

    On December 6, Senator Ted Stevens (r-alaska) Became The 68th Senator To Formally Register His Support For The Als Registry Act! Thanks To The Terrific Outreach Of Advocates In Alaska Who Have Participated In The Association's National Call For A Cure And Veterans Day Letter To The Editor...
  7. C

    Als Data Base Record

    It Is Time For Each Of Us To Move Forward And Act On This Horrible Disease. Each Pals Must Give A Representative From Their State Information To Place In The Data Base For Record Comparison To Alleviate This Thief (als). We Can Do This, And By Providing The Information, This Disease Can Be...
  8. southernflowers

    Hello

    Hello, my name is Elizabeth and my husband and I are stationed at Mt Home AFB, ID, and my mom,age 65 was just recently diagnosed with PLS. She lives in South Carolina, and it has taken them 3 1/2 yrs to diagnose. She is now that far progressed in this disease. She is a very determined and...
  9. southernflowers

    Hello all!

    :) Hi, My name is Elizabeth and my husband and I are stationed in Mt Home AFB, Idaho, my mom who lives in South Carolina, was just diagnosed with PLS. Could use alot of information and support. Thanks so much for the opportunity to say hello ! Elizabeth
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